Defining Recovery: It’s not as simple as just resting up.

The idea for this blog came from a tweet that I liked a few weeks ago. It popped up on my timeline just because someone I follow had liked it and I usually scroll straight past most of these ones. However, there was a picture of a man wrapped up, wearing a hat, out in the woods by the looks of things and it made me think of myself doing similar, day after day for these last few months.

The tweet read, ‘Healing is not as simple as ‘rest’. It’s exercising, rehab, falling down, fearing and going deep into the pain and fighting your way back.’

In a strange way, the tweet made my day. Since having my pacemaker fitted and spending months off work, I’ve gone through all manner of stuff, but have lost count of how many times I’ve felt the need to brush it off and tell anyone who’s asked that I’m ‘slowly getting there’.

Over 3 months on from my operation and I thought I’d try to explain my own personal experience of recovery. I haven’t fully recovered and I think feeling that way is actually a long way off, but I think I’ve managed to get myself into a position where I feel a great deal stronger, fitter and more confident about my heart. So, before I start to forget the things I’ve been through, I thought I’d get some of it down.

I didn’t think I’d done a lot of resting, until my family told me otherwise. I was talking about the fact that I thought I hadn’t really got many naps in during my time at home and it brought about a few smiles from those around me. Apparently, the truth is more that I was napping pretty much every day for the first three weeks of being out of hospital. And while in hospital I just felt like I lurched from nap to nap, even pretending to be asleep on a regular basis so that the bloke opposite wouldn’t talk to me!

So in fact, I’ve been so exhausted during my recovery that I can’t even remember how it’s been a lot of the time. The first few weeks are a blur. I know that they featured a lot of pyjama action, a lot of irritability on my part and, so I’m told, a lot of napping. I’m told that there were times where I’d just fall asleep mid conversation, which sounds a lot of fun. I also remember feeling very frightened by it all, worried that one wrong move would pull the pacemaker wires out of place meaning that I’d have to go back into hospital.

When my first sick note ran out – after a week – I had a telephone appointment with my doctor. This made me realise how poorly I was. We spoke for a good while and I felt like I was having to fend him off at times, as he alluded to me going back to hospital. Then, when he settled for just issuing another sick note, he instantly doubled the time that I’d asked for. This was good, in that it settled me down a bit while also making me think that I could find lots of things to do with all of that time. It became bad pretty quickly when I realised that I wasn’t strong enough to even sit and read for over long, before I was nodding off! It quickly felt like it would be a very long month.

There have been quite a few unusual times since then. While recovering, I seemed to develop a bit of a stutter and at times simply couldn’t get the words out. Furthermore, I’d find myself talking about something one minute, then unable to remember a word or where the conversation was going next. And people would tell me about things I’d said and done, but I literally couldn’t remember a single bit of it. And – as per the quote that inspired this – there’s also been a bit of falling down. It’s amazing how many times I’ve taken a tumble when just trying to tie my laces, but that left hand side of mine just wouldn’t work for a good few weeks!

The healing or recovery process has been one of the most frustrating times of my life. I joke about tying my laces, but there were plenty of times in the first couple of weeks where someone had to tie them for me. My wife had to help me get dressed, as well as undressed, including doing things like zipping up my coat and putting a hat on my head if we went for a walk! I hated it, but it’s definitely the kind of thing that keeps you grounded, in terms of how you think your recovery’s going! I found that lack of independence incredibly frustrating and it was something that I struggled to deal with as normally, if something needs done, I just do it myself. Then suddenly you’re in a place where you’re not allowed to even get a glass of water and someone’s started doing your jobs around the house. Awful!

A combination of beta blockers and lack of sleep (I think brought on by taking beta blockers) made me feel like I wasn’t recovering at all. Every day, I’d just feel like I’d taken another hit and was back to square one, which was kind of demoralising. I’d be out on a walk, feeling like I was definitely getting stronger, watching my heart beat not quite hit what it had the day before at the top of a hill and being able to walk just a little bit further and yet I still couldn’t sleep, still couldn’t remember things, still couldn’t hold a conversation without telling someone to forget it because I couldn’t remember what I was going to say!

I struggled to sleep for well over a month. It’s still hit and miss now, but when it was night after night after night, it felt like it might never go back to normal and that being awake until 3am might well be how it was now. As well as leaving me exhausted, it also had me worried that I wouldn’t be able to hold down a job. Because of this, for a good while it felt like my life was about to encounter an even bigger change and it was a fear that didn’t sit well at all with me.

By far the most difficult part of the whole healing process has been the mental side of things. I’ve always felt that I was mentally very strong, but for the last few months I’ve been filled with a kind of fear and doubt that I don’t think I’ve ever experienced before. I suppose it’s kind of a given that I feared I might die, particularly in the early stages when I didn’t fully understand what was going on and then again when I stopped taking beta blockers. I felt that they were absolutely crucial to keeping me safe and so although I was pleased to come off them, as I was assured that they were adding a lot to my fatigue, I was nervous about what could happen when they were taken away.

It’s been difficult adjusting mentally to not being at work. Alongside that though, has been a bit of fear about going back there too. My final episode with palpitations and extreme dizziness happened in my classroom and I’ve not set foot in there since. The prospect of doing so again fills me with trepidation, even though thinking logically, I know it’s not the classroom’s fault. Nor is it work’s fault. But both things terrify me. I went back for an attendance meeting recently and to discuss my phased return to work and despite having worked there for 8 years I was physically shaking when I entered the building. It took me more than an hour to feel anywhere near right again and it was only when I ventured down to my old department that I settled more.

I’ve suffered with guilt the whole way through my recovery. Having covered up what was wrong for over 6 months, I feel awful about what I put my family through. My wife and kids watched me pass out in the airport before we went on holiday, as the palpitations hit and that makes me feel horrible about myself. My daughter has watched me like a hawk ever since and it’s been a balancing act dealing with the guilt as well as stopping myself becoming irritable as she’s asked again and again if I’m alright.

But the guilt hasn’t stopped with my immediate family. I know that my mam and dad have worried too, as well as my sister. Come to think of it, I’ve probably had my most in depth conversations ever with my dad across the time of my recovery as he’s opened up a bit and made it clear that he was worried about me. Believe me, us northern men aren’t always so forthcoming when it comes to our feelings, particularly when we’re of my dad’s vintage!

I’ve struggled with similar feelings where friends are concerned. Nobody knew a thing and I’m not sure what people must think of me for not at least confiding in one of them! Friends from work have had to cover my classes, set my work and even learn to adjust to life without the kind of ridiculously inane emails that I send on a daily basis. I really can’t thank them enough. Knowing that my other kids – my classes – are in their safe hands has eased that particular side of my guilt, but it’s felt like a real struggle. I know people would tell me to not feel guilty, but it’s been hard to avoid.

In all, like the tweet said, recovering has not been as simple as just resting. In truth, it’s been the most difficult time of my life and I’ve had to adjust from being someone who genuinely felt a bit invincible to being someone who has had to face up to just how vulnerable he actually is. It’s not a process I’ve liked and not one I really want to accept, which means that while I head back to work very soon, I’ll have to continue to work hard at my fitness and any mental blocks that might just be lingering.

For now though, returning to work will bring a sense of normality, but definitely not an end to my recovery or any sense of being healed. If you see me at work and ask how I am, I’ll more than likely say ‘good’ or ‘better’. What I mean to say but can’t, is that I feel sh*t scared, utterly terrified, panic stricken at the thought of doing any of this again, as well as riddled with guilt because of what I feel like I’ve put family and friends through. But, to paraphrase the tweet that inspired this, I’ll continue exercising, falling down, fearing, going deep into pain and fighting my way back.