Diary – Middle Age Fanclub

The Pacemaker Diaries: It’s been two years.

You wouldn’t know it with the amount that I probably bang on about it, but I genuinely didn’t want having a pacemaker to define me. Still, I write about it, think about it constantly, find myself telling people things about it and frequently catch myself looking at my scar in the mirror or prodding away at the bit at the top of my chest where my wires are sticking up, right at the surface.

That said, a quick search of my posts tells me that the last time I wrote a ‘Pacemaker Diary’ was actually in November 2023, a whole year after it was fitted. So, even though it’s been mentioned in some pieces I’ve written since, maybe I’m not banging on about it quite as much as I imagine. Anyone I speak to regularly can feel free to correct me on that though!

I was prompted to write this post because of Facebook memories of all things. In the lead up to Christmas and New Year just gone it felt like every few days there’d be something popping up where I was thanking people for their support or updating friends on my progress. They reminded me of both how poorly I’d been and also how far I’d come and they made me do a lot of thinking about the little machine that sits in my chest.

It’s been over 2 years since I had the pacemaker fitted. I didn’t pay much attention to the anniversary this time around. Sometimes there’s just too much going on in life for you to pause and have a think about stuff. But those Facebook memories changed all that and made me want to write something down about what life’s like these days. Self indulgent? I don’t know really, but I guess if you think that way you have the option of clicking that little x in the corner of your screen and not reading on.

I think writing about it simply helps me get on with life, which might be a bit more understandable when I tell you what it’s all like.

The pacemaker makes me feel a lot more comfortable about life, that’s for sure. I hardly ever worry about my heart. But paradoxically, it is always there to remind of just how poorly I was and the long, long time that it took me to get better. On top of that it’s a constant reminder of how low it all made me feel and the worryingly negative effects it had on my mental health.

There are both positives and negatives when it comes to having this device though and those reminders on social media made me think about a few of them. The first is just a bit of a change, I suppose, although does feel slightly negative. These days, my heart literally thumps when there’s not really been a great deal of effort. I’ve noticed it when climbing stairs and also that when getting into bed and straightening out the duvet, once I settle down my heart will be thumping! As someone who had an unnaturally low heart rate prior to all this – one of the reasons for the pacemaker – that takes a bit of getting used to!

Having the pacemaker has really made me focus on my health and fitness to the point where I’m really quite obsessive and possibly even a little evangelical about running! Silly really, but it genuinely makes me feel strong being able to run, especially in actual races. I couldn’t recommend it enough, even though I’m aware it’s not everybody’s cup of tea!

Another negative is that I live with a heart monitor by the side of my bed. This makes me feel really, really old! The monitor doesn’t do much, but I’m aware it’s feeding data back to the hospital which still feels a little bit weird. As I mentioned earlier as well, I have another scar as well as a strange bit on my chest where my wires just stick upwards. It’s a neat little scar, but those wires spoil things and coupled with the big scar that I have on my chest from a childhood heart operation, it’s not a great look!

My condition means that I still get heart palpitations, albeit nowhere near as regularly as I was having them for large parts of 2022 before my operation. However now, when they come I can rest assured that the pacemaker will kick in after about 5 seconds and stop them. It’s still quite a frightening thing, especially when it feels like the pacemaker isn’t going to react. The thought of having them for untold hours and just trying to get on with my day while wondering if I was about to pass out is a memory that still lingers! Still, that pacemaker is reassuring though.

Another drawback is that my left arm and shoulder don’t seem to work very well anymore. My scarring is really close to my left shoulder and I assume that it’s affected things as I haven’t got full movement and my left arm isn’t as ‘strong’ as it used to be. I mean, it wasn’t strong anyway, but it’s just a bit pathetic nowadays!

The final gripe I have is with my aftercare. I’ve only had one follow up appointment with a cardiologist since it all happened. Even that wasn’t actually scheduled. It was an appointment about a 24 hour monitor I’d worn, but in between times I’d had to have my pacemaker fitted, so the appointment was made later because the cardiologist didn’t realise and had to spend a load of time reading my notes before actually seeing me! Since then – January 2023 – there have been a couple of scans done but no meeting with actual doctors, which feels wrong.

I have had a letter from my hospital saying that a planned appointment had been rescheduled for later in the year, but I hadn’t even been informed about the planned appointment, so it’s all a bit of a mystery really! Luckily, I feel fit and healthy but it is concerning not to be speaking to someone when we’re almost 2 years on from the last appointment.

All in all, it’s been a bit of a whirlwind. Two years of major change that, just when you think you’ve almost forgotten about it and are living pretty normally, comes back to haunt you via bloody Facebook of all things! Clearly, while this pacemaker doesn’t really define me, it’s never going to leave me either!

Spring is springing, so why am I looking back?

As we creep out of the darkness that winter has held us in for the last 4 months or so, I’m finding myself casting my mind back a year. I don’t want to. I’d told myself I needed to move on. And yet, here we are, reliving many of the negatives of a year ago and I’m not entirely sure why.

This time last year, I was 4 months into my recovery after heart surgery to fit a pacemaker. I was suffering physically and mentally. However, while physically I was slowly getting better and might even have started running again, mentally I was struggling.

I would continue to struggle for a while longer too.

This time last year though, I could at least feel like the end of being so poorly and frankly useless, was in sight. Every day I’d go for a walk and since starting this in the November of the previous year, I’d gradually been able to go out for longer. So, a year ago I was managing to take myself out for a walk for a good hour, some days more if the weather was brighter and warmer. I’d just wander, but mainly I had two routes. Either I’d walk slowly up to one of our local parks and take in the sights there, or I’d head out a bit further across some farmland and along a public footpath, past horses and cattle and down towards a golf club before realising I was way too tired and ambling home.

As the days got warmer and lighter I started noticing more. Leaves appearing on trees, buds of life on shrubs and flowers and as soppy as it might sound, it gave me a bit of hope.

A year on and it’s funny how things change. I’ve been back at work and back to the usual routine since around March 2023 and I don’t feel like I’ve settled at all. I still feel my pacemaker every day. It’s just there; a slightly heavier presence in my chest than normal. Day by day, it just sits there and whenever there’s even the slightest palpitation or flutter, it just kicks in and works. Sometimes, for no apparent reason it makes the area around it ache and can be more than just a little bit uncomfortable. Recently I’ve had a sharp pain around the place on my chest where the wires come out of the top of the pacemaker. I don’t think it’s anything to worry about, but I’d rather it wasn’t there as well.

Being back to ‘normal’ has been strange, mainly because deep down I don’t feel like I am really back to normal. Most things are a bit more of a strain than I remember. I’m much more tired, much more easily, which in turn means that I have to really try hard not to be grumpy at everyone and everything! And I am really trying.

In September, when the new academic year started, I made it my goal to just try and be relentlessly positive. I praised classes for the slightest thing, spent a chunk of down time every day adding positive points to our monitoring system so that kids could see I appreciated them, kept smiling and was as energetic as I could be in class and even in meetings, which was a major struggle for me!

I felt that the positivity had slipped around Christmas time. I was counting down the hours of the day, the days of the week and just clinging on for the weekends when I could relax and just get out more and have time to think.

Since January I’ve tried to get back on that positive horse and I think I’ve done ok, but if I’m honest I’m still just clinging on. But then clinging on is not losing my grip, so maybe I should be grateful. I find that I’m looking back a lot. For one, I wish I’d admitted to being poorly about 6 months before I did! Whether much would have changed, I’ll never know. I’m also thinking back to those early spring walks and noticing the colour returning to the world. Oddly, despite feeling so lost at that particular time, I really miss it.

I remember speaking to a friend when I first had my operation last year. He’d previously had heart surgery too and he told me that feeling like myself again was going to be a long process. Turns out he was right!

So, while the buds appear on the shrubs in the park and trees begin to go green once more, I’m looking back when I really need to look forward. Maybe I should take spring as my inspiration. Clearly, some kind of changes are needed.

The Pacemaker Diaries – One year on…

So it turns out that last week had a number of big days. Huge, in fact because last week marked a year since I had my pacemaker fitted.

I remember it well. Of course I do. At the beginning of that week I had realised that I was seriously ill. Even then, I didn’t know what the problem was – but it had been going on for months – and when I was admitted to hospital I still just thought they’d keep me in overnight and send me home with some tablets that would miraculously make everything alright again. My heart wouldn’t keep me awake at night. There would be no more listening for it and wondering if it had stopped.

The morning came and a lovely cardiologist disappointed me with his lack of tablets, then stunned me with his talk of a pacemaker. Despite protesting – “those things are for pensioners, man” – I was very quickly put in my place. “Put it this way, your heart stopped for over 4 seconds last night.” The other option was not to do it, but to lose my driving licence and then start worrying about my job. After all, it’s not normal or safe to be blacking out left, right and centre and I was told that this was likely.

“I think we’ll fit that pacemaker then!”

I laughed about it but I was crying inside. I was far too young for this. And I didn’t have a clue what it actually meant. At least I felt safe in the hospital, but it was a lot to take in. Still is.

The next day, just after 11am, I was wheeled down to theatre, talked through what was going to happen and then they just got on with it. The whole place was calm, jovial even. I was terrified. But do you know what, the more people singing along to the radio while performing your heart surgery, the more comforting it gets!

Later, back on the ward, there was the kind of drama that you never expect to be involved in, as my pacemaker failed and my heart monitor set off every alarm within a five mile radius. At least it felt that way. My heart decided it was time for yet another episode and the palpitations started with a vengeance. Doctors and nurses crowded around my bed, assuring me that help was on the way while I watched a monitor until my heartbeat hit 209bpm. At that point someone took the sensible decision of moving the monitor out of my eyeline.

It turned out fine. Someone from the cardiology department fixed it all online and in as much of a matter of fact way as was humanly possible. While I felt like I was quietly awaiting the grim reaper or a lovely warm light or whatever death looks like (various deceased comedy legends welcoming me ‘home’ and saying they’re my biggest fans?), him and his machine had “a chat with” my pacemaker. It worked.

The next day I was released back into the wild, not really knowing what awaited me. In truth, I didn’t really know if I could make it to the car without stopping for a rest. I imagined though that it might mean a couple of weeks off work. It was four months later that I finally went back.

It’s been a weird year. In some ways I feel worse than ever. It definitely did something to me, mentally and I do find it difficult to motivate myself. On the other hand though, I’m running regularly and actually feel fitter than ever. There have been three 10k races in the last 6 months or so and I feel like I’ve proved a bit of a point to myself. I’m still not quite convinced though.

I can feel my pacemaker every day. When I put on deoderant or have a wash, it’s there. Sometimes, I catch it a bit and it hurts. Occasionally, when I’m carrying a box or something of any decent size, it might rebound on to my chest and boy does it sting! The wires sit there, just above my scar and the pacemaker and they’re right there, just underneath the surface of my chest. Place a finger there and it’s almost like you could pluck them out with a little bit of effort. Not that I’m encouraging anyone to try! I think this is a consequence of me not being very well built; another reason to curse my body! And if you look closely, through my lustrous chest hair, you can actually see the outline shape of the pacemaker itself. How attractive!

There have been no more scares though. No more lying awake at night listening to my heart and wondering what it’s doing. So, the pacemaker is actually a comfort. My heart works which is rather nice.

For a long, long time I was fatigued. I felt like I’d never get better or feel like myself again. My body seemed to take an age to come to terms with what had happened. Coming off beta-blockers helped, but didn’t solve it. From my third day back at home I was going for a daily walk. At first, it was just 10 minutes, but being as bloody-minded as I am I worked that upwards as quickly as I could. But I’d be capable of very little else once I was done and days would simply drift past. Months later, when I felt capable to run a short distance, it would take the rest of the day to recover. In short, for months I just felt terrible. My body ached and I generally felt exhausted. I’d be out of breath easily and immensely frustrated by this.

It’s really not an exaggeration to say that this last year has been a real battle. I’ve felt incredibly low at times – and still have periods like that to this day – and I’ve had to work really hard to keep myself going. I’ve suffered with terrible bouts of sadness, that I didn’t imagine would be possible for me; not just feeling sorry for myself, but genuinely feeling sad, tearful and lonely about life and how things were turning out. The pacemaker made me angry and in truth, I still can’t get my head around the fact that I have to have it.

I regularly remind myself of how lucky I am though. It’d be too easy to just sort of give up and feel sorry for myself. I was almost discharged from hospital before I’d even got to a ward. Only a last minute check showed any kind of problem and only when a senior cardiologist had looked at it all properly was it decided that I had to have a pacemaker. I was actually minutes from going home, so who knows what could have happened? Clearly, I’m lucky though. I’m still here, my quality of life is good and although there are still one or two flutters with my heart now and again, I’m fairly confident that my pacemaker has it all covered!

What I’ve learnt over the course of the last 12 months is that it’s going to take me a while to recover fully and to feel like I’m back to my normal self again. I was ill for months before I got treated – my own fault because I hid what was wrong. But I think that has taken its toll. As I said earlier, I still struggle mentally but I don’t have as many low periods as before. Normal life with work and everything else has helped. But I’ve learnt that I really do have the strength to come back from adversity. Maybe, in another year’s time I’ll have consigned pacemaker diaries to the back of my mind. Maybe.

Hopefully, the future is a bit happier and healthier! Maybe I’ll get to change my tune and write about that instead!

The Pacemaker Diaries – summer’s been a bummer.

A bit of a cathartic post, this one. I’m aware that I’ve written a lot about my heart surgery last year and I’m aware of the fact that it might just be getting boring. It’s getting that way for me too. But despite my many quiet vows to not let the pacemaker define me, it’s kind of a tough one that! So this post is sort of cathartic because it allows me to vent my frustrations as well as publicly celebrate my successes, however minor they might have been.

So, my recovery continues. I’m still very aware of my pacemaker; you can literally see it when I take my top off (steady ladies), there’s a scar that looks red raw when I’ve done any exercise and more than anything else, I can just feel it sitting there in my chest. It doesn’t hurt or anything like that, but it does get sore after exercise or if I’ve had to take on any lifting.

Thankfully though, I’m now running regularly. I manage to get out twice a week and have been pretty much exclusively running 10ks recently in preparation for an upcoming race. That race is the Morley 10k, which I ran in October of last year before collapsing a few weeks later and then finding myself in hospital a few weeks after that. So all the omens are good! At the time of running it, I felt good and strong and despite the fairly undulating course and the fact that I was actually very poorly, managed a time of 54 minutes! I don’t think I’ll get anywhere near that this time around!

That said, for a recent hilly 10k that I ran around town, I clocked a time of under 57 minutes, so I’m not actually too far short of pushing for a similar sort of time as last year. Maybe, with a decent tail wind for the last couple of miles, I can achieve something worth shouting about. It would certainly help me get past the whole ‘woe is me and my pacemaker ‘ thing!

My body continues to frustrate me though. As far as I’m concerned, I’m out of shape and carrying a bit of a belly, although my wife tells me I’m being ridiculous. When I’m feeling more rational I can put the aches, the pains and the belly down to middle age, but I still feel unhappy with it and I’m fairly sure that had I not had the health issue that I’ve had, I would be in a lot better shape physically. Four months off work with nowhere near enough exercise and far too much snacking has clearly taken its toll and I’m struggling to get back into shape.

I found summer really tough and for long periods felt as low as I can remember ever feeling. As is my habit, I tried to hide it from everyone and seemed to be getting away with just being labelled occasionally grumpy, but if I’m honest, I just couldn’t cope with it. Running kept me sane and when I was out on those early mornings I hardly had a care in the world. But at home, on holiday, visiting family, I just felt awful. It wasn’t anyone else’s fault. I felt impatient with those around me and angry at what’s gone on since last year with my health. In terms of recovery, being so frustrated and angry really doesn’t make things easy and I’ve genuinely felt like I couldn’t move on.

The peak of it came when I just felt I had to talk to someone. Not like me at all, but I knew I had to try. I tried repeatedly, but something always got in the way and then one afternoon while she was at work and I was at home, my wife called me about something and I just confessed to how incredibly sad I felt. She’s been brilliant!

Talking a lot has certainly lightened the load, but I’m still considering counselling or just joining some kind of support group. I did this when I first got my pacemaker as I really struggled with what felt like the injustice and the worry of it all and it did me the world of good to hear from other people in the same situation and just to share a few things.

Part of the reason for the summer being such a tough time was that I stepped down from coaching my junior football team. The club wanted me to get rid of 4 players in order to make space for others that they were dropping down to us from our A team and I just wasn’t going to do it. I hoped they’d see reason, but when they didn’t I walked away on principle. I’d always tried to be a totally inclusive coach and when the club decided to release players based on ability, that was enough for me. They tried to dress it up as something else, citing players commitment as a reason, but it simply wasn’t anything to do with it.

I’d coached the team for 7 years and loved it. It had always helped me with my physical fitness and mental health too and so to lose it hit me hard. I managed to get a couple of the players that were dropped fixed up with a new club, but the fact that I could no longer coach kids I’d coached for years and years – including my own son – knocked me for six and just deepened the sadness I was already feeling.

The issue dragged on a bit because parents were actually on my side and so there’s been a lot of complaints flying around. However, the club have actually emailed one of the parents of a lad who was dropped and told some rather creative lies about me while being incredibly loose with the truth about what actually happened. I could have got very angry, but I’ve just decided to leave it. If it makes people feel better about themselves to tell blatant lies, I haven’t really got the time for that in my life. Not at the moment. Talk about kicking a man when he’s down!

I still go to watch the team, as my lad still plays and most of the squad are still ‘my’ players, but I just won’t have anything to do with the people at the club now. One or two in particular should be thoroughly ashamed of themselves, but I guess that some people are just never in the wrong! Karma can be a bitch though, so we’ll wait and see!

For now, I’m just trying to be as positive about life and recovery as I can. I’ve thrown myself into work and whether I’m happy or not, I’m trying to be as positive as is possible. So, I’ve dug out my Disney teacher voice for the new year 7s so my natural grumpiness doesn’t scare them and I’m putting positive comments on our ClassCharts whenever I think someone’s done something good. I’m trying to make sure that I explicitly praise as many students as possible whenever they’ve gone beyond the ordinary and I’ve not sent one email about how pointless a meeting is yet! I’ve even been early for a few of them as well. Inner me’s not particularly fooled, but the positivity is genuinely helping. It probably sounds stupid, but while I’m being positive, I’m not being negative and not feeling sorry for myself. Does that make sense?

So life, as ever, is full of ups and downs. And while there are a few too many downs for my liking at the moment, I’m hoping to work my way out of the way I feel before the end of the year. In November I’ll have had a pacemaker for a whole year and if I’m honest, it is a comfort. As far as I can tell, the old issues with my heart are fixed. Now, however difficult I find it at times, it’s just time to get on with life again in the best way that I can.

The Pacemaker Diaries: Summer Edition!

It’s been a while since my last Pacemaker Diary entry, so with a bit of time to kill and a few tings to update, I thought I’d write another.

In my last entry, in April, I wrote about hitting a bit of a bump in the road. I’d had to abandon a run, was suffering with dizziness and a general feeling of tiredeness and just generally wasn’t really coping with the whole ‘adjusting to having a pacemaker’ thing. I’d been back at work for around a month and was beginning to feel like I might not make it through to summer.

https://middleagefanclub.wordpress.com/2023/04/09/the-pacemaker-diaries-weve-definitely-hit-a-bump-in-the-road/

Well, it’s now summer. Two weeks into the holidays to be precise and while I’m nowhere near as fit and healthy as I had been pre-pacemaker, I’m still slowly getting there. Obviously, this is incredibly frustrating. You might argue that I should have gotten used to how my body feels and reacts to things by now. After all, I had my pacemaker fitted about 9 months ago. But, dear reader, I’m not used to it and that’s all there is to it. Or rather, I am used to it but I still absolutely hate the whole idea of it! It’s wonderful to still be here and I’m eternally grateful to the NHS and the staff at the hospital that helped me through and indeed the ones that still help when I have some kind of appointment, but I can’t change how I feel.

The phrases “I’m getting there” and “It’s just going to take time” have become as much a comfort as they have a pain in the arse, but I have to just keep reminding myself – and sometimes others, who don’t seem to get it – that I am indeed getting there and that this whole process of feeling myself and feeling fit again is jus going to take time! Friends who’ve gone through the same or similar have told me on numerous occasions that they didn’t feel themselves again for a long, long time and I suppose I’m simply finding out about how true that is!

Anyway, enough of the moaning and moping. There are some positives to discuss!

For one, I’m still running. It’s been a while since I had to be mature and force myself to take a break and as a result my fitness is consistently okay. It’s not great, but it’s okay…didn’t Whitney Houston once sing about that or something similar? Perhaps, that’s not a good thing…

I’ve been uncharacteristically sensible about my running for the past 4 or 5 weeks and have built up my distances really steadily. So, perhaps I’m tempering my frustration and anger a little bit after all.

Having completed the Leeds 10k in late June I took a break and haven’t ran that distance since. Instead, when I got back out I settled for running just 5ks for a couple of weeks and then built the distance up from there. I still haven’t managed another 10k run, but I think I will do soon as I’m consistently running over 5 miles. There have been varying results pace-wise, but I’m feeling more than capable of getting round the distance. It’s still reeeaaallly frustrating to see how slow I’ve ran at times, but I just have to cope!

I ran while on holiday recently, taking on some huge hills in North Wales, while receiving curious looks from llamas on a local farm! I ran for 5 miles, finishing on the beach and felt fantastic afterwards, but I made sure that I gave myself lots of recovery time and didn’t go for a second run that week which was a relief and a bit frustrating in equal measure! However, the change of scenery and obvious challenge felt like it did me the world of good.

After every run I’m on to planning my next one and genuinely feeling like I can go further. I was out earlier this week and managed 5.3 miles and I’ll be out again this weekend. I’m hoping that this one can be my first 10k since June, but we’ll see how the body reacts over the next couple of days.

I managed to damage my lower back around a month ago and then just when I felt it was almost better, injured it again. The first time was while leaning out of my chair at work to pick up something I’d dropped and then the second time was while getting something out of a cupboard in the kitchen! Both dangerous and high stakes activities, I’m sure you’ll agree but as frustrating as this is I guess it just comes down to having a battered, middle aged body, so I’ll have to cope!

As part of getting my back better I’ve started doing yoga again. It was something me and my wife did years ago and both felt we benefitted hugely from it. But time constraints and a young family got in the way and it fell by the wayside. However, my wife recently suggested a few moves that might help my back and so yoga is back on the agenda. I’ve only managed a couple of very short sessions with the aid of my phone to keep me right on the positions, but I’m hoping it will start to help with my health. It’s a bit more complicated as anything that means putting weight or pressure on my left hand side results in my pacemaker digging into me, but I’d take that over palpitations and blackouts any time!

I’m also hoping that yoga will help with my mental health. I’ve had lots of support in recovering from surgery and adapting to this new almost constantly fatigued, old body. However, it’s still been incredibly tough and I’ve felt isolated and sad throughout. The running has helped as I’m alone with my thoughts and can resolve a lot of stuff while I’m out. But I’m hoping that yoga – however bitesized it might be – will help me feel a lot calmer and relaxed about things.

So, there we have it. I have my next 10k race planned for October and am wondering about entering another before that. Either way though, I’m just hopeful that I can stay fit and healthy for long enough to feel that I can go back to work again in September feeling a bit brighter about things and then have a real go at the October 10k. As ever though, it’s just nice to still be here, however difficult things might seem and however low I might get at times!

Always look on the bright side: Five Things That Made Me Smile in June.

Every once in a while I like to write these blogs, mainly to remind myself that in amongst all of the reasons to moan about life, there’s always something to smile about. It’s nice to send some positivity out to readers too though. We all need to moment to smile about, don’t we?

So, what was turning the frown upside down in June then?

The weather. I don’t know about where you live, but here in the UK, in our little corner of West Yorkshire, it was wonderfully sunny for a while. The British joke about this, of course, is that we spend most of our year complaining that it’s too wet or too cold only to then complain that it’s too hot when we get our annual 5 day heatwave! It seems the weather gods can’t win! However, the sunny weather made me smile. And while it doesn’t make running or working in the garden any easier, it does make the whole place look better. We had a few afternoons spent just sitting, reading and chatting in our back garden and the colours are fantastic. And then you look up and see a clear, vividly blue sky. How could you not smile?
The Borrowdale Banksy. If you don’t already know, then Borrowdale is in the Lake District here in the UK. It’s a National Park and an area of outstanding natural beauty. Borrowdale itself is a particularly remote area but for the last couple of years, slate sculptures have been appearing; the work of the Borrowdale Banksy. No one seems to know this Banksy’s identity, but the sculptures are fantastic, as you can see below and news of the latest one made me smile.

The latest Borrowdale Banksy sculpture in the Lake District

Eating Out. June is a very busy month in our house as there are two family birthdays within 3 days. So, much of the first part of the month gets taken up with planning and buying presents and it just feels like we’re rushing around for weeks. This year however, we decided that rather than just eat out to celebrate both birthdays at the same time, we’d go out twice. This was smile-worthy for two reasons – delicious food and drink and no dishes for me to do! And then, having enjoyed the meals so much we decided to end the weekend with a Sunday roast in the pub!
A Science Cover. Covering lessons is one of my least favourite things as a high school teacher. You often don’t know the class or have the faintest idea about the subject and you’re usually required to move halfway round the school to get there, meaning that you often arrive late with a chaotic cluster of children waiting for you, excited by the fact that their teacher’s not here. It also means that you’ve lost a free period. On a delightful Friday last month, I walked into my room and turned on my computer to discover I’d been given a Year 7 Science cover. My only free of the day, gone! I was gutted. However, a few minutes later, things got better when a member of the Science department came down to tell me about the class being moved. She asked if I’d like them to come down to my room, so of course I said ‘yes’! First problem removed. Then it turned out they were doing an exam; a peaceful cover almost guaranteed. Sadly – but much to my amusement and hopefully yours too – once I’d settled the class and got them going with their exam, my inner teenager came to play. I had the brainwave of thinking I might try to do the exam myself. Why, I don’t know. I was appalling at Science at school. But when I opened the first page I was delighted. The first section was human reproduction and try as I might to have a proper go at the questions, all I could do was attempt silly answers. The results, below, had me stifling giggles and holding off smiles for what felt like the rest of the day. And yes, to confirm, I am a 51-year-old man.

Local Legend on Strava. Lots of you will know that I love running. It’s been important for both my physical and mental health, especially over these last 5 years or so and it’s been something I’ve done on and off all my life. Nowadays I track my runs via the Strava app on my watch and was thrilled on a recent run to find that I’d earned a ‘medal’ for an achievement. Eager to see if I’d beaten some kind of personal best, I was straight on the app in order to have a look. Imagine my surprise to discover that I’d become a ‘Local Legend’ on a stretch of my run that others in my town must use regularly. Imagine my surprise turning to fits of laughter though when I discovered what I was the local legend of. My official title is ‘Local Legend of Poo Bins to Topcliffe’, a stretch of path that leads up to a local mill building at Topcliffe from…well you can work the rest out for yourself.

Let’s concentrate on the ‘legend’ rather than the ‘poo bins’.

The Leeds 10k. I’ve written about this already in another blog post, but June was the month that I completed the Leeds 10k, which would have been reason enough to smile in itself. However, I also managed to run it in the fastest time I’ve managed since my heart surgery – 56 minutes, if you insist on asking! – and this kept a smile on my face for days!

So, in terms of good stuff happening, June was an excellent month. Even getting a cover lesson ended up with me smiling, even though it was a very juvenile reason! I hope you enjoyed reading about it all though!

The Pacemaker Diaries: We’ve definitely hit a bump in the road.

Every once in a while I’ve written an update of what I called my ‘Pacemaker Diary’ over the last few months. It’s mainly because it’s a good way for me to have a bit of a moan, but it also fills people in on how things are going and means that there might just be a few less people that I have to lie to and fob off by telling them I’m ‘getting there’. I mean, if I had a pound for every time I’d said that since November, I’d be a millionaire. I’d also be very annoyed at myself for not discovering this get rich quick scheme a lot earlier.

I thought I’d update simply because a lot of them so far have been about progress, however small that’s been. But lately, my progress has slowed to a crawl again. Maybe writing about it might help me find the motivation that’s needed to keep moving on. Or maybe it’ll help me to ‘frame myself’ as some would say in our part of Yorkshire.

It’s been a shock that such a small thing could derail me so much. But initially it was a slight cold that slowed me right down. It was a couple of weeks ago that I was aware that I was slowing down again. I couldn’t go upstairs without feeling out of breath and had a hint of a cough. So it wasn’t a heavy cold, but it was having an effect on me.

At the same time I’d stepped up the hours of teaching on my phased return to work, taking on an additional class and four extra hours of teaching a week. That weekend the football team that I coach had its game cancelled, leaving me with a free Sunday. Rather than rest, I decided to go for a run in the early morning sunshine. Boy, would I regret that.

I hadn’t even ran a mile and I was struggling. But, I kept on going. Not long after though, a little voice in my head was telling me that I couldn’t do this. It was a voice that dominated me when I was younger, but one that I really hadn’t heard in years. Still, I kept on until faced with a long hill to run up, I decided on a compromise. With my body aching and struggling to breath steadily I re-routed, doubled back and avoided the hill, settling for running a 5k (3.1 miles) rather than the 4 miles I’d been aiming for. It was slow and ragged, but worst of all, I didn’t enjoy even one step of it.

I only just made it. My legs felt like they were falling forward independently of the rest of my body and I was wheezing heavily. I was alarmed by just how I terrible I felt. I took a photo of myself when I’d finished and it horrified me when I looked at it later. I looked haggered and old. Everything hurt and it left me feeling very down. My body continued to ache well into the next week.

On the Monday at work, my Year 7 form were added to the mix on my timetable and even on the first day of that happening I was struggling. I’d had a poor weekend, not really sleeping and struggling to shift the tiny bit of cold that I’d picked up. On the very first day of the week I put in a request to have my last lesson of the day covered in order to head home early. Work, as ever during this whole nightmare, were kind and obliging. A great start to the week though and enough to show me that getting back to a full teaching timetable might have to be a way off yet.

I’m also struggling with a back problem that had first hit me in February. I’d bent down to pick up my son’s football boots and been hit by nausea inducing levels of pain as my back froze. I’ve struggled with my back for many years, so I though it would pass within a week or so, but it hasn’t. Instead, even as I write, I can feel pain in my hips and hamstrings. The pain has moved down my body and in way, I feel more fragile than ever. Nothing to do with my heart – for once – but enough to begin to get me down.

The next weekend brought even more problems and no run, making me feel like any recovery had very much ground to a halt. I seemed to have picked up some sort of bug and felt dizzy and sick the whole time.

My heart continues to just plod along nicely, kept in check by the little machine that sits just underneath my left collarbone. The scarring hurts still, but that feels like the least of my worries.

The most frustrating thing of all is that my heart feels fine. However, having hidden the problem for around 6 months last year and then had to take so long off work after my operation, my body might just be a little bit broken. Clearly working for so long with the problem has really cost me. Clearer still, spending four months at home, only managing a daily walk while being otherwise inactive doesn’t keep your fitness at the levels you might need, however much you might kid yourself.

I’m quickly learning that my body is going to take much, much longer than I thought to heal. It feels like the slightest little problem, like a cold or a stomach bug, is going to have a huge effect, setting me back if not to square one, then square 3 or 4 at best. Impatient as I am, I wanted to be just stepping off square 25 by this point. As a result, I’m angry and sad and I really don’t like feeling that way.

I’m hopeful that the coming weeks will go better for me. I’ve rested and not gone out for a run for over a week, but I hope that I’ll feel ready enough soon to get going once again. I’ve entered a 10k race in May and am desperate to take part. It’ll really hurt if I’m not able to do it.

Fighting fit: The mind boggles!

As I write, it’s been 62 days since having my pacemaker fitted. A rough estimate puts that at 1492 hours or 89,543 minutes. That’s a lot of time to think. A lot of time to worry, to feel low or even just to find yourself giving up. However, there have been positives in that time too and I hope that from today, I’m going to start feeling the positives outweigh the negatives.

My last ‘fighting fit’ update was a few weeks ago. In the time since then there have been good and bad days. Christmas and New Year came and went and if anything, they slowed my progress down. Not only was my diet a bit worse, but the festivities take up so much of our time that I didn’t manage to fit in anywhere near enough exercise. Turns out no one wants to wander slowly around the streets keeping an eye on a wobbly, wheezing middle aged man dressed in a long coat and a bobble hat when there’s Christmas films to be watched or left over turkey knocking around.

However, I enjoyed both Christmas and New Year. We managed to see some family and despite the fact that my kids are a bit older now – 13 and 16 – it was still nice to see them open their presents. And I always enjoy seeing what my wife makes of the gifts that I’ve bought her. It’s nice to give gifts and it was nice this year that I bought my wife something she really wouldn’t have expected, but really liked. It was a print based around The Fairytale of New York, her favourite Christmas song. If you’re a music fan and enjoy artwork you might want to check out where it’s from – www.stuffbymark.co.uk – his art really is ace!

Once all of the celebrations were out of the way and the kids were back at school, there was a lot to think about. Given the return of a quiet house, the bonus of having the ability to think returned too! My main conclusion has been that I need to do more exercise and to do it regularly if I’m going to get my normal life back.

So, that’s what I’ve been doing. I’ve had a few more visits to my favourite park and gone back to look at the two animal sculptures. This time I made sure to read the inscriptions and one of them gave me a lovely glowing feeling. It was on the Harry the Hare sculpture and it was about the fact that a local business had commissioned it. One line in particular got me. It just read, “For the people of Morley.” What a great gift! I hope others appreciate it and take time out to go and have a look. It’s literally a work of art! Whether it’ll succumb to vandalism, who knows? But I sincerely hope not. Anyway, here he is below.

And here’s the owl that I visited again the next time I was in the park.

The mental side of my recovery is something I’ve found really tough going. I’m not used to being poorly and not used to being unable to do the things I want to, physically. I’ve found it all very frustrating. I enjoy my work, but haven’t been in since all of this started. Furthermore, I’m faced with another month off sick now too. It’s led me to see pretty low days and I joined an online support group to see if it would help me.

Talking about my problems isn’t really me, but I’ve managed to ask a few questions and listen to what other people have been through and it’s really helped. Apart from anything else, it’s comforting to know that there are lots of people going through the same as me and lots of them who know a lot more than me and are happy to pass on advice.

The support group has also encouraged me to read a bit about pacemakers and what’s happened to me and that’s been a real positive. It was explained in hospital and on the visit to the cardiologist, but I suppose understandably, I didn’t really take it all in. Anyway, reading about my pacemaker and its genius has really made my mind boggle. It’s about the size of a matchbox but it has the technology to store a ton of data about what’s going on in there, while also pretty much making my heart work properly. I guess we shouldn’t be that surprised by the capability of modern medical technology…but I still am.

Another form of support came as a Christmas gift. My daughter bought me the book below – with her own money for the first time ever – and told me it was so that I could read it and not feel like I was going through it alone. Even typing that feels emotional, so you can imagine how I felt on Christmas day!

It’s quite a remarkable book by a poet called David Toms, who was born with a rare heart condition and faced up to his problems in many ways. In the book he talks a lot about the power of walking and, as this is something I do a lot, I could really relate to his story. He also eventually had to get a pacemaker, so what he had to say about that felt really useful too. Reading the book also helped me to see that I could get through what’s going on with me. David Toms has faced up to a great deal more than I have and despite whatever setbacks or challenges, he’s found the strength to just keep going. So, keep going is exactly what I’ll do.

I’m beginning to realise how long it’s going to take me to feel better both physically and mentally. Two months on and I’m still tired out very easily, especially compared to the way I was before and the level of fitness I had. The area around my pacemaker and my scar is still sore and my movement still restricted and I’m left breathless much more often than I’d like. And mentally, testing myself out terrifies me, but I’m just so incredibly frustrated by how weak I feel. Even when I get back to the normality of work, I know that I’ll still be nowhere near fitness and nowhere near feeling confident. It seems it’s going to be a long road.

And with that, I promise to update you whenever something interesting happens. Fingers crossed that it’s not any kind of setback though!

Fighting fit; an occasional diary.

Last time I wrote one of these diary entry style posts I was getting fitter and stronger as I was able to get out walking every day. Not far, but enough to keep myself ticking over and gaining in fitness. I’d also grown a beard, simply because my circumstances meant that I couldn’t shave and finally, I was having trouble sleeping. So, in short, I was writing a diary entry about how mind-numbingly boring life was in recovering from an operation!

Well, I’m not sure it’s got anymore exciting.

A couple of weeks ago I had a little bit of a set back, albeit in terms of the rough plan I had in my head. With only a week to go of my sick note from work I rang them and tentatively agreed that I’d be back teaching at the start of January. It was more my call than theirs, to be fair. Sadly though, only a few days later, having spoken to my doctor, I was forced to call them back and let them know that I’d had to arrange another month long sick note. I had a really rough weekend, feeling tired all of the time, sick and still in quite a bit of pain from my scarring. It simply dawned on me that I was rushing things far too much. I spoke to some friends, family and people who’d had similar procedures and they reminded me of just how much I’d been through and that it wasn’t just a case of getting fit enough to go out for a walk that would get me back to normal life. My doctor agreed and was more than happy to renew my sick note and so, I bowed to the greater knowledge before me and made probably the best decision I’d made in years. I’m not very good at just resting, but I’ve realised that I need to stop rushing things too. I’m discovering that patience is key in this recovery business!

Since then, there’s been a real disruption to my safe little routine by way of Christmas and all that comes with preparing for big day. I’ve not been able to do a great deal in terms of decorating the house or going out on shopping trips to get what Santa’s elves can’t make, but I’ve been able to join in with some of the wrapping, despite my very limited wrapping skills. Truth is, I wrap presents like a moody child in a hurry to do anything but wrap presents, but needs must I suppose.

I also managed to fit in two hospital visits, both of which threw my routine out , but more of that later.

All of this has meant that my daily walks have stopped. In fact, before today, my last walk was on 15th December, meaning that some of the fitness that I’d built up has probably been lost.

However, before that I’d been managing to get out for a walk every day and for the last week of doing so we’d had some lovely weather too. For a couple of those days I ventured up to one of our local parks simply because it would mean walking a little bit further than I’d been managing and also as I knew it would look lovely in the sun, as you can see below. Being in the park felt lovely though; a great deal better than just sticking to the streets close to where I live. So, even though I was really tired out just getting there, it was well worth it…even if when I walked there for the second day in succession my legs felt like jelly and I had to have a sit down on a park bench for a short while just to make sure that I’d get home in one piece!

The plan now that Christmas is out of the way though, is to start getting back out there and making the most of the fresh air. I found some new sculptures of animals (pictured below) on one of my park visits and am assured that there are more, so I’m definitely going to head up and explore again, all in the name of fitness!

The final major thing that’s happened over the last few weeks is the hospital visits. My first was a pacemaker clinic just over a week before Christmas. It only took around 30 minutes, but in that time the specialist was able to let me know that there had been no drama since I’d left hospital. She adjusted my pacemaker a little bit in order to help with my breathlessness and told me a little bit about its battery life and function and I left feeling pretty good about it all. It’s fascinating stuff when you see that they just drape a wand-like piece of machinery over your shoulder which then reads the data off your pacemaker. The kind of technology that makes me feel even older!

Then, almost a week later and a few days before Christmas, I went in for an appointment with a cardiologist. It turned out that this was actually to do with a previous problem, but when he saw my notes and learned of my procedure, he was able to talk me through quite a bit about what was going on, which was great.

It was quite the good news day. Firstly, he told me that there was no damage to my heart. Apparently my problem is merely ‘electrical’ in that my pacemaker cells haven’t been controlling the rhythm of my heart very well at all. Hence, the need for my pacemaker. Although I’d been told this in hospital it was still comforting to know as I’d had some of the symptoms of a heart attack on more than one occasion leading up to my time in hospital. But, it seems I’m made of stronger stuff than I’d thought!

The other bit of good news was that I was told to work my way off my beta blockers, which have been fairly responsible for me feeling so rough and tired all of the time. So for now, I have a half a tablet per day, but soon I’ll leave them behind altogether. In turn, this means that I’ll be able to go out running fairly soon, although I’m happy to force myself to wait until I feel as right as possible until I actually do it. If I’ve learnt one thing in all of this it’s that I need to start listening to my body more and to stop being so eager to be on the move all of the time. That said though, I cannot wait to get out and run again. My last run was on October 14th. After that, everything started to go downhill and within a month I was in hospital.

It’s been 50 days since I was admitted to hospital. I went in thinking I’d be back to full fitness within a few days, only to be brought crashing down to Earth by the news of a pacemaker. Fingers crossed that I’m closing in on getting back to normal.

Fighting Fit: an occasional diary (volume 2)

With time on my hands following heart surgery, last week I started writing an occasional diary. It seemed only right, especially after more than one person (including myself) joked at the time of my latest cardiology drama, that I’d do anything to get something to write a blog out of! Well, the joke’s on them; it’s very much more than one now!

Not a lot has changed in my routine this last week. It can’t really, as I’m just not capable of doing a great deal at the minute! I am now managing to walk every day though, without fail. I don’t go far. I’m not commuting out to beauty spots and hiking for untold miles across rugged terrain. Rather, I’m shambling my way around the streets where I live and making sure, that if I take an occasional selfie if it has a field or a tree in the background, so that my life looks slightly more interesting.

The positive with my walks is that they are edging ever further in distance. Or rather, I’m taking more steps each time. I haven’t yet recorded one on my Strava app as I feel pathetic enough as it its, without recording it on a form of social media that shows a map of my route and the invariably embarrassing statistics that yell, ‘Hey everyone, Graham used to be really fit, but now he can walk just short of a mile in 40 minutes!’

It feels quite lovely to be out though. I’d hesitate to say anything about how it feels to still be alive, but there is a small element of that. While I haven’t found myself standing marvelling at the magnificence of trees, I do feel quite lucky. And actually, last week’s diary did blather on about how dramatic the fog was!

In other news, I’ve grown a beard. This is largely down to circumstance, as I can’t really lift my left arm up for very long without it really hurting because of the scarring from my op. It’s also just an action that I’ve been told to avoid for something like 6 weeks, while my pacemaker settles into my chest, so the action of stretching my skin with my left hand while shaving with my right is a bit of a no-go area. Hence, the beard.

I’ve never had any inclination to grow a beard before. However, despite its whiteness, I’m quite pleased with it and for the near future at least, it’s staying. My wife and children don’t like it so much. It tickles when I’m near them. I’m certain that my parents will hate it too. Others have said it looks good though. I worry I might be turning into Roy Keane, while hoping that I’m actually morphing into George Clooney. Who knows what the truth is? Actually, me and it’s not the Clooney truth! I actually quite like it though and I’m surprised with how much I’ve taken to it.

As time has moved on and I’ve felt less pain, I’m writing more too and as well as some blog posts, I’ve written first drafts of four or five new poems. It’s very tiring though and so there’s only so much that I can do. I suppose I need to find some kind of balance between resting and trying to do more, while also kerbing my urge to just get stuck back in again at full pace. Some days I long to be back at work, but for once I’ve been sensible enough to listen to what the professionals have told me and stick to getting the rest that I need. Hopefully it’ll pay off and everything will get back to normal given time.

I worry that all I seem to write about is being poorly though. I suppose it’s obviously still fresh in my head, but while I had a tentative brush with something serious, I really don’t want to bore people to death about it now! With that in mind I’ve made a list of things I can write about so in the coming days I need to find the energy to research a couple of things and possibly write some Christmas themed posts.

The final thing that has been on my mind this week is my lack of sleep. Since leaving hospital I’ve managed one unbroken night of sleep. And by unbroken, I don’t just mean not waking up. I always wake up on the night. What I mean is not having to get out of bed.

Almost every night for over a month now has been punctuated by an extended amount of time out of bed. The pattern seems to be that I sleep for anything up to an hour before waking up, unable to get back to sleep. This then usually means a couple of hours or so spent downstairs, reading or doing a bit of writing. I even did the dishes at 1.30am the other day! I’m hoping that I can find a way to sort this out!

Overall, this week I feel noticeably better. I still get tired out easier than I’d like, I’m still bored a lot of the time and I still miss seeing people…but I feel more human.

Until next time…

Category: Diary