Tag: Heart

The Pacemaker Diaries: It’s been two years.

You wouldn’t know it with the amount that I probably bang on about it, but I genuinely didn’t want having a pacemaker to define me. Still, I write about it, think about it constantly, find myself telling people things about it and frequently catch myself looking at my scar in the mirror or prodding away at the bit at the top of my chest where my wires are sticking up, right at the surface.

That said, a quick search of my posts tells me that the last time I wrote a ‘Pacemaker Diary’ was actually in November 2023, a whole year after it was fitted. So, even though it’s been mentioned in some pieces I’ve written since, maybe I’m not banging on about it quite as much as I imagine. Anyone I speak to regularly can feel free to correct me on that though!

I was prompted to write this post because of Facebook memories of all things. In the lead up to Christmas and New Year just gone it felt like every few days there’d be something popping up where I was thanking people for their support or updating friends on my progress. They reminded me of both how poorly I’d been and also how far I’d come and they made me do a lot of thinking about the little machine that sits in my chest.

It’s been over 2 years since I had the pacemaker fitted. I didn’t pay much attention to the anniversary this time around. Sometimes there’s just too much going on in life for you to pause and have a think about stuff. But those Facebook memories changed all that and made me want to write something down about what life’s like these days. Self indulgent? I don’t know really, but I guess if you think that way you have the option of clicking that little x in the corner of your screen and not reading on.

I think writing about it simply helps me get on with life, which might be a bit more understandable when I tell you what it’s all like.

The pacemaker makes me feel a lot more comfortable about life, that’s for sure. I hardly ever worry about my heart. But paradoxically, it is always there to remind of just how poorly I was and the long, long time that it took me to get better. On top of that it’s a constant reminder of how low it all made me feel and the worryingly negative effects it had on my mental health.

There are both positives and negatives when it comes to having this device though and those reminders on social media made me think about a few of them. The first is just a bit of a change, I suppose, although does feel slightly negative. These days, my heart literally thumps when there’s not really been a great deal of effort. I’ve noticed it when climbing stairs and also that when getting into bed and straightening out the duvet, once I settle down my heart will be thumping! As someone who had an unnaturally low heart rate prior to all this – one of the reasons for the pacemaker – that takes a bit of getting used to!

Having the pacemaker has really made me focus on my health and fitness to the point where I’m really quite obsessive and possibly even a little evangelical about running! Silly really, but it genuinely makes me feel strong being able to run, especially in actual races. I couldn’t recommend it enough, even though I’m aware it’s not everybody’s cup of tea!

Another negative is that I live with a heart monitor by the side of my bed. This makes me feel really, really old! The monitor doesn’t do much, but I’m aware it’s feeding data back to the hospital which still feels a little bit weird. As I mentioned earlier as well, I have another scar as well as a strange bit on my chest where my wires just stick upwards. It’s a neat little scar, but those wires spoil things and coupled with the big scar that I have on my chest from a childhood heart operation, it’s not a great look!

My condition means that I still get heart palpitations, albeit nowhere near as regularly as I was having them for large parts of 2022 before my operation. However now, when they come I can rest assured that the pacemaker will kick in after about 5 seconds and stop them. It’s still quite a frightening thing, especially when it feels like the pacemaker isn’t going to react. The thought of having them for untold hours and just trying to get on with my day while wondering if I was about to pass out is a memory that still lingers! Still, that pacemaker is reassuring though.

Another drawback is that my left arm and shoulder don’t seem to work very well anymore. My scarring is really close to my left shoulder and I assume that it’s affected things as I haven’t got full movement and my left arm isn’t as ‘strong’ as it used to be. I mean, it wasn’t strong anyway, but it’s just a bit pathetic nowadays!

The final gripe I have is with my aftercare. I’ve only had one follow up appointment with a cardiologist since it all happened. Even that wasn’t actually scheduled. It was an appointment about a 24 hour monitor I’d worn, but in between times I’d had to have my pacemaker fitted, so the appointment was made later because the cardiologist didn’t realise and had to spend a load of time reading my notes before actually seeing me! Since then – January 2023 – there have been a couple of scans done but no meeting with actual doctors, which feels wrong.

I have had a letter from my hospital saying that a planned appointment had been rescheduled for later in the year, but I hadn’t even been informed about the planned appointment, so it’s all a bit of a mystery really! Luckily, I feel fit and healthy but it is concerning not to be speaking to someone when we’re almost 2 years on from the last appointment.

All in all, it’s been a bit of a whirlwind. Two years of major change that, just when you think you’ve almost forgotten about it and are living pretty normally, comes back to haunt you via bloody Facebook of all things! Clearly, while this pacemaker doesn’t really define me, it’s never going to leave me either!

The Pacemaker Diaries – One year on…

So it turns out that last week had a number of big days. Huge, in fact because last week marked a year since I had my pacemaker fitted.

I remember it well. Of course I do. At the beginning of that week I had realised that I was seriously ill. Even then, I didn’t know what the problem was – but it had been going on for months – and when I was admitted to hospital I still just thought they’d keep me in overnight and send me home with some tablets that would miraculously make everything alright again. My heart wouldn’t keep me awake at night. There would be no more listening for it and wondering if it had stopped.

The morning came and a lovely cardiologist disappointed me with his lack of tablets, then stunned me with his talk of a pacemaker. Despite protesting – “those things are for pensioners, man” – I was very quickly put in my place. “Put it this way, your heart stopped for over 4 seconds last night.” The other option was not to do it, but to lose my driving licence and then start worrying about my job. After all, it’s not normal or safe to be blacking out left, right and centre and I was told that this was likely.

“I think we’ll fit that pacemaker then!”

I laughed about it but I was crying inside. I was far too young for this. And I didn’t have a clue what it actually meant. At least I felt safe in the hospital, but it was a lot to take in. Still is.

The next day, just after 11am, I was wheeled down to theatre, talked through what was going to happen and then they just got on with it. The whole place was calm, jovial even. I was terrified. But do you know what, the more people singing along to the radio while performing your heart surgery, the more comforting it gets!

Later, back on the ward, there was the kind of drama that you never expect to be involved in, as my pacemaker failed and my heart monitor set off every alarm within a five mile radius. At least it felt that way. My heart decided it was time for yet another episode and the palpitations started with a vengeance. Doctors and nurses crowded around my bed, assuring me that help was on the way while I watched a monitor until my heartbeat hit 209bpm. At that point someone took the sensible decision of moving the monitor out of my eyeline.

It turned out fine. Someone from the cardiology department fixed it all online and in as much of a matter of fact way as was humanly possible. While I felt like I was quietly awaiting the grim reaper or a lovely warm light or whatever death looks like (various deceased comedy legends welcoming me ‘home’ and saying they’re my biggest fans?), him and his machine had “a chat with” my pacemaker. It worked.

The next day I was released back into the wild, not really knowing what awaited me. In truth, I didn’t really know if I could make it to the car without stopping for a rest. I imagined though that it might mean a couple of weeks off work. It was four months later that I finally went back.

It’s been a weird year. In some ways I feel worse than ever. It definitely did something to me, mentally and I do find it difficult to motivate myself. On the other hand though, I’m running regularly and actually feel fitter than ever. There have been three 10k races in the last 6 months or so and I feel like I’ve proved a bit of a point to myself. I’m still not quite convinced though.

I can feel my pacemaker every day. When I put on deoderant or have a wash, it’s there. Sometimes, I catch it a bit and it hurts. Occasionally, when I’m carrying a box or something of any decent size, it might rebound on to my chest and boy does it sting! The wires sit there, just above my scar and the pacemaker and they’re right there, just underneath the surface of my chest. Place a finger there and it’s almost like you could pluck them out with a little bit of effort. Not that I’m encouraging anyone to try! I think this is a consequence of me not being very well built; another reason to curse my body! And if you look closely, through my lustrous chest hair, you can actually see the outline shape of the pacemaker itself. How attractive!

There have been no more scares though. No more lying awake at night listening to my heart and wondering what it’s doing. So, the pacemaker is actually a comfort. My heart works which is rather nice.

For a long, long time I was fatigued. I felt like I’d never get better or feel like myself again. My body seemed to take an age to come to terms with what had happened. Coming off beta-blockers helped, but didn’t solve it. From my third day back at home I was going for a daily walk. At first, it was just 10 minutes, but being as bloody-minded as I am I worked that upwards as quickly as I could. But I’d be capable of very little else once I was done and days would simply drift past. Months later, when I felt capable to run a short distance, it would take the rest of the day to recover. In short, for months I just felt terrible. My body ached and I generally felt exhausted. I’d be out of breath easily and immensely frustrated by this.

It’s really not an exaggeration to say that this last year has been a real battle. I’ve felt incredibly low at times – and still have periods like that to this day – and I’ve had to work really hard to keep myself going. I’ve suffered with terrible bouts of sadness, that I didn’t imagine would be possible for me; not just feeling sorry for myself, but genuinely feeling sad, tearful and lonely about life and how things were turning out. The pacemaker made me angry and in truth, I still can’t get my head around the fact that I have to have it.

I regularly remind myself of how lucky I am though. It’d be too easy to just sort of give up and feel sorry for myself. I was almost discharged from hospital before I’d even got to a ward. Only a last minute check showed any kind of problem and only when a senior cardiologist had looked at it all properly was it decided that I had to have a pacemaker. I was actually minutes from going home, so who knows what could have happened? Clearly, I’m lucky though. I’m still here, my quality of life is good and although there are still one or two flutters with my heart now and again, I’m fairly confident that my pacemaker has it all covered!

What I’ve learnt over the course of the last 12 months is that it’s going to take me a while to recover fully and to feel like I’m back to my normal self again. I was ill for months before I got treated – my own fault because I hid what was wrong. But I think that has taken its toll. As I said earlier, I still struggle mentally but I don’t have as many low periods as before. Normal life with work and everything else has helped. But I’ve learnt that I really do have the strength to come back from adversity. Maybe, in another year’s time I’ll have consigned pacemaker diaries to the back of my mind. Maybe.

Hopefully, the future is a bit happier and healthier! Maybe I’ll get to change my tune and write about that instead!

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The Pacemaker Diaries – summer’s been a bummer.

A bit of a cathartic post, this one. I’m aware that I’ve written a lot about my heart surgery last year and I’m aware of the fact that it might just be getting boring. It’s getting that way for me too. But despite my many quiet vows to not let the pacemaker define me, it’s kind of a tough one that! So this post is sort of cathartic because it allows me to vent my frustrations as well as publicly celebrate my successes, however minor they might have been.

So, my recovery continues. I’m still very aware of my pacemaker; you can literally see it when I take my top off (steady ladies), there’s a scar that looks red raw when I’ve done any exercise and more than anything else, I can just feel it sitting there in my chest. It doesn’t hurt or anything like that, but it does get sore after exercise or if I’ve had to take on any lifting.

Thankfully though, I’m now running regularly. I manage to get out twice a week and have been pretty much exclusively running 10ks recently in preparation for an upcoming race. That race is the Morley 10k, which I ran in October of last year before collapsing a few weeks later and then finding myself in hospital a few weeks after that. So all the omens are good! At the time of running it, I felt good and strong and despite the fairly undulating course and the fact that I was actually very poorly, managed a time of 54 minutes! I don’t think I’ll get anywhere near that this time around!

That said, for a recent hilly 10k that I ran around town, I clocked a time of under 57 minutes, so I’m not actually too far short of pushing for a similar sort of time as last year. Maybe, with a decent tail wind for the last couple of miles, I can achieve something worth shouting about. It would certainly help me get past the whole ‘woe is me and my pacemaker ‘ thing!

My body continues to frustrate me though. As far as I’m concerned, I’m out of shape and carrying a bit of a belly, although my wife tells me I’m being ridiculous. When I’m feeling more rational I can put the aches, the pains and the belly down to middle age, but I still feel unhappy with it and I’m fairly sure that had I not had the health issue that I’ve had, I would be in a lot better shape physically. Four months off work with nowhere near enough exercise and far too much snacking has clearly taken its toll and I’m struggling to get back into shape.

I found summer really tough and for long periods felt as low as I can remember ever feeling. As is my habit, I tried to hide it from everyone and seemed to be getting away with just being labelled occasionally grumpy, but if I’m honest, I just couldn’t cope with it. Running kept me sane and when I was out on those early mornings I hardly had a care in the world. But at home, on holiday, visiting family, I just felt awful. It wasn’t anyone else’s fault. I felt impatient with those around me and angry at what’s gone on since last year with my health. In terms of recovery, being so frustrated and angry really doesn’t make things easy and I’ve genuinely felt like I couldn’t move on.

The peak of it came when I just felt I had to talk to someone. Not like me at all, but I knew I had to try. I tried repeatedly, but something always got in the way and then one afternoon while she was at work and I was at home, my wife called me about something and I just confessed to how incredibly sad I felt. She’s been brilliant!

Talking a lot has certainly lightened the load, but I’m still considering counselling or just joining some kind of support group. I did this when I first got my pacemaker as I really struggled with what felt like the injustice and the worry of it all and it did me the world of good to hear from other people in the same situation and just to share a few things.

Part of the reason for the summer being such a tough time was that I stepped down from coaching my junior football team. The club wanted me to get rid of 4 players in order to make space for others that they were dropping down to us from our A team and I just wasn’t going to do it. I hoped they’d see reason, but when they didn’t I walked away on principle. I’d always tried to be a totally inclusive coach and when the club decided to release players based on ability, that was enough for me. They tried to dress it up as something else, citing players commitment as a reason, but it simply wasn’t anything to do with it.

I’d coached the team for 7 years and loved it. It had always helped me with my physical fitness and mental health too and so to lose it hit me hard. I managed to get a couple of the players that were dropped fixed up with a new club, but the fact that I could no longer coach kids I’d coached for years and years – including my own son – knocked me for six and just deepened the sadness I was already feeling.

The issue dragged on a bit because parents were actually on my side and so there’s been a lot of complaints flying around. However, the club have actually emailed one of the parents of a lad who was dropped and told some rather creative lies about me while being incredibly loose with the truth about what actually happened. I could have got very angry, but I’ve just decided to leave it. If it makes people feel better about themselves to tell blatant lies, I haven’t really got the time for that in my life. Not at the moment. Talk about kicking a man when he’s down!

I still go to watch the team, as my lad still plays and most of the squad are still ‘my’ players, but I just won’t have anything to do with the people at the club now. One or two in particular should be thoroughly ashamed of themselves, but I guess that some people are just never in the wrong! Karma can be a bitch though, so we’ll wait and see!

For now, I’m just trying to be as positive about life and recovery as I can. I’ve thrown myself into work and whether I’m happy or not, I’m trying to be as positive as is possible. So, I’ve dug out my Disney teacher voice for the new year 7s so my natural grumpiness doesn’t scare them and I’m putting positive comments on our ClassCharts whenever I think someone’s done something good. I’m trying to make sure that I explicitly praise as many students as possible whenever they’ve gone beyond the ordinary and I’ve not sent one email about how pointless a meeting is yet! I’ve even been early for a few of them as well. Inner me’s not particularly fooled, but the positivity is genuinely helping. It probably sounds stupid, but while I’m being positive, I’m not being negative and not feeling sorry for myself. Does that make sense?

So life, as ever, is full of ups and downs. And while there are a few too many downs for my liking at the moment, I’m hoping to work my way out of the way I feel before the end of the year. In November I’ll have had a pacemaker for a whole year and if I’m honest, it is a comfort. As far as I can tell, the old issues with my heart are fixed. Now, however difficult I find it at times, it’s just time to get on with life again in the best way that I can.

Poetry Blog: ‘Routine’

It’s been a while since I wrote any poetry. Anything complete, that is. There are several pages of notes and drafts in various notebooks and on my phone, as it goes and I definitely need to find time to get some of them finished. I know that there are notes and stuff because I’ve just looked. Every so often when I look I find one that I remember little or nothing about, although they’re usually from some stage of my time at home recovering from heart surgery last year.

Today’s poem is one of them. On first view it looked more or less complete, but once I read it again I made a few changes and additions and came up with what’s below. It’s a poem about the frustration of the every day routine, when the every day routine is slow, dull and painful.

Routine

As the gulls cry above
they seem to mock you,
gliding as they do, freely,
uninterrupted across another slate grey sky
almost laughing at the state you're in.

Beneath there is no flight, no such freedom
as you struggle through the curtained drizzle,
checking your pulse, taking deep breath after deep breath,
careful to slow your steps 
and evermore conscious of how helpless you must look,
knowing that you will collapse like a man at the end of a month long expedition,
somewhat gasping and groaning at your discomfort,
but trying to hide your fatigue 
as you return indoors
where only the slow death march of daytime TV
and snacking await.
The beard, the boredom and the bitterness
that come with early onset uselessness slowly grow,
the ticking of every clock in the place 
the only soundtrack to both your thoughts and your days,
while you sit, restless, clueless about how this all came to pass.

I’ve no idea when this was written. It could have been any of several weeks where I just couldn’t see an end to the weakness and fatigue that I felt. What I do know is that I felt angry. Livid at the fact that while having a pacemaker fitted was undoubtedly essential for me, it came with no real warning. I never would have suspected that the palpitations and dizziness I’d been experiencing on and off for months would have needed anything more than tablets to be sorted out. Maybe that’s why I’m an English teacher and not a cardiologist!

While I’m still a little angry and frustrated, the days of freezing cold, lonely walks are long gone. And while I’m not as healthy as I’d like to be, I’m a lot better than whenever this was written.

I’m gradually coming to terms with the changes that surgery has brought about and slowly recovering, although I think it’s going to be a lot longer before I feel quite myself again. So the poem is reflective of the kind of bleak times that I rarely, if ever seem to have anymore, but it intrigued me when I found it.

Anyway, I hope it made for a decent, interesting read! Feel free to leave a comment.

The Pacemaker Diaries: Summer Edition!

It’s been a while since my last Pacemaker Diary entry, so with a bit of time to kill and a few tings to update, I thought I’d write another.

In my last entry, in April, I wrote about hitting a bit of a bump in the road. I’d had to abandon a run, was suffering with dizziness and a general feeling of tiredeness and just generally wasn’t really coping with the whole ‘adjusting to having a pacemaker’ thing. I’d been back at work for around a month and was beginning to feel like I might not make it through to summer.

https://middleagefanclub.wordpress.com/2023/04/09/the-pacemaker-diaries-weve-definitely-hit-a-bump-in-the-road/

Well, it’s now summer. Two weeks into the holidays to be precise and while I’m nowhere near as fit and healthy as I had been pre-pacemaker, I’m still slowly getting there. Obviously, this is incredibly frustrating. You might argue that I should have gotten used to how my body feels and reacts to things by now. After all, I had my pacemaker fitted about 9 months ago. But, dear reader, I’m not used to it and that’s all there is to it. Or rather, I am used to it but I still absolutely hate the whole idea of it! It’s wonderful to still be here and I’m eternally grateful to the NHS and the staff at the hospital that helped me through and indeed the ones that still help when I have some kind of appointment, but I can’t change how I feel.

The phrases “I’m getting there” and “It’s just going to take time” have become as much a comfort as they have a pain in the arse, but I have to just keep reminding myself – and sometimes others, who don’t seem to get it – that I am indeed getting there and that this whole process of feeling myself and feeling fit again is jus going to take time! Friends who’ve gone through the same or similar have told me on numerous occasions that they didn’t feel themselves again for a long, long time and I suppose I’m simply finding out about how true that is!

Anyway, enough of the moaning and moping. There are some positives to discuss!

For one, I’m still running. It’s been a while since I had to be mature and force myself to take a break and as a result my fitness is consistently okay. It’s not great, but it’s okay…didn’t Whitney Houston once sing about that or something similar? Perhaps, that’s not a good thing…

I’ve been uncharacteristically sensible about my running for the past 4 or 5 weeks and have built up my distances really steadily. So, perhaps I’m tempering my frustration and anger a little bit after all.

Having completed the Leeds 10k in late June I took a break and haven’t ran that distance since. Instead, when I got back out I settled for running just 5ks for a couple of weeks and then built the distance up from there. I still haven’t managed another 10k run, but I think I will do soon as I’m consistently running over 5 miles. There have been varying results pace-wise, but I’m feeling more than capable of getting round the distance. It’s still reeeaaallly frustrating to see how slow I’ve ran at times, but I just have to cope!

I ran while on holiday recently, taking on some huge hills in North Wales, while receiving curious looks from llamas on a local farm! I ran for 5 miles, finishing on the beach and felt fantastic afterwards, but I made sure that I gave myself lots of recovery time and didn’t go for a second run that week which was a relief and a bit frustrating in equal measure! However, the change of scenery and obvious challenge felt like it did me the world of good.

After every run I’m on to planning my next one and genuinely feeling like I can go further. I was out earlier this week and managed 5.3 miles and I’ll be out again this weekend. I’m hoping that this one can be my first 10k since June, but we’ll see how the body reacts over the next couple of days.

I managed to damage my lower back around a month ago and then just when I felt it was almost better, injured it again. The first time was while leaning out of my chair at work to pick up something I’d dropped and then the second time was while getting something out of a cupboard in the kitchen! Both dangerous and high stakes activities, I’m sure you’ll agree but as frustrating as this is I guess it just comes down to having a battered, middle aged body, so I’ll have to cope!

As part of getting my back better I’ve started doing yoga again. It was something me and my wife did years ago and both felt we benefitted hugely from it. But time constraints and a young family got in the way and it fell by the wayside. However, my wife recently suggested a few moves that might help my back and so yoga is back on the agenda. I’ve only managed a couple of very short sessions with the aid of my phone to keep me right on the positions, but I’m hoping it will start to help with my health. It’s a bit more complicated as anything that means putting weight or pressure on my left hand side results in my pacemaker digging into me, but I’d take that over palpitations and blackouts any time!

I’m also hoping that yoga will help with my mental health. I’ve had lots of support in recovering from surgery and adapting to this new almost constantly fatigued, old body. However, it’s still been incredibly tough and I’ve felt isolated and sad throughout. The running has helped as I’m alone with my thoughts and can resolve a lot of stuff while I’m out. But I’m hoping that yoga – however bitesized it might be – will help me feel a lot calmer and relaxed about things.

So, there we have it. I have my next 10k race planned for October and am wondering about entering another before that. Either way though, I’m just hopeful that I can stay fit and healthy for long enough to feel that I can go back to work again in September feeling a bit brighter about things and then have a real go at the October 10k. As ever though, it’s just nice to still be here, however difficult things might seem and however low I might get at times!

Poetry Blog: ‘Adjustments’.

When I got ill at the back end of last year, it’s safe to say that it came as a bit of a shock. I should have known really, as I’d been having problems with my heart for around six months. I just didn’t really let anyone know, preferring to keep things to myself in the hope that it would just pass. It’ll come as no surprise to learn that I have no medical qualifications whatsoever…

After having my pacemaker fitted, life changed. I didn’t really realise just how poorly I was. To me, this was just a setback and while I was in hospital where the biggest ask of the day was to avoid the attention of the bloke in the opposite bed, I felt okay.

It was the recovery that would cause me problems. I was constantly tired, unable to do lots of previously routine things and ended up being signed off from work for 4 months.

The poem is about the changes that I felt happening at the time. 

Adjustments

The white beard is the most noticeable thing,
and it's salt and pepper by the way, if we're trying to be kind,
but when one side of you doesn't really work
one's vanity is forced to take a back seat.
The worried looks and constant stream of questions
come from both sides; yours because you see what I don't,
mine because I feel what you cannot.
The daily walk in the early morning frost and biting cold
is new; pleasant and frustrating all at the same time,
a conundrum that's vital if I'm to get any better.
The layers help because everything and everywhere is cold 
and channeling my inner Inuit is the only way I know of fighting back
and easily the best way of hiding too.
The fractured sleep and vivid dreams are an irritant, 
but one that I have lots of time to deal with all of a sudden.
The lethargy just isn't me.
not usually,
but then, there's nothing of the usual about this present normality.
Similarly, the new sleep positions are restrictive, 
but then again the lack of choice might just set me free.
Or keep me awake.
As for the guilt and the fear, well there's no positive spin
to be found here; a work in progress is what it is I guess and I have it on the authority of those in cardiology that these things will eventually pass.
Life will move on in time and a new version of me can finally emerge, 
whenever that may be.
For now, I have to make adjustments.

The title was the first that came to me in the writing of this poem, which is unusual as I usually struggle for a title. I was thinking about the way things had changed for me while I was ill. I wasn’t working, my routine was different and even my appearance had changed. Thinking about it all was an unavoidable yet dangerous thing to do though as it never failed to make me feel down. At times not only did it feel like everything had changed, but also that it would never go back to normal.

In short, I came upon the idea of these somewhat traumatic changes being more like adjustments. I was still me…just adjusted in quite a few ways. It didn’t matter if I could shave or wash properly. It didn’t matter that for a while even 10 or 15 minutes of walking left me exhausted and it didn’t matter that I felt frightened or guilty; I had to tell myself that it would pass. And as frustrating as it was that it took so long to feel even vaguely normal, what mattered had to be that one day I’d feel like myself again, even if I’d had to make a few adjustments along the way.

I hope you enjoyed the poem and that anyone who reads regularly isn’t getting bored of me telling them I was poorly once!

P.S. In case you’re wondering, the picture is of an Inuit, as referenced in the poem. It was how I felt out walking in winter in the big coat, hat, gloves, scarf and several layers that were needed to make me feel like I might make it home from a walk and not be half human, half block of ice!

Poetry Blog: ‘A Familiar Face’

This is another poem about being poorly. I’m conscious that I’ve written quite a few poems and articles around this theme since the run of the year, but I’m afraid you’ll have to forgive me for getting a little bit obsessed with the failure of my heart.

Luckily, people are always very complimentary about these poems and I’ve received some incredibly supportive messages as I’ve been recovering, which has been a real help. I keep finding these poems tucked away in notebooks on scrap paper and figure that I might as well put them out as a blog. I’ve said this before, but if I don’t they’re just words on a bit of paper that no one other than me will read. Well, what would be the point of a blog in that case?

A Familiar Face

Amazing how, after all this trouble and time,
the answer could be hiding in plain sight.
The thing you feared the most, yet least expected,
the solution to the mystery you'd never have suspected
has come back to haunt you, bring chaos where there was relative calm.

For some time now, you've sensed its approach,
felt the uncomfortable sensation of its hot breath on your neck.
The thing you wouldn't name, but still recognised,
the terror that you lived with, but couldn't look in the eyes
lands a blow to leave you weak at the knees
and grabbing at thin air for balance.

So now, a new danger from a familiar face,
as you fight against yourself, your own failing,
knowing that whatever you do, whatever changes you make
may not be enough
and while all around you wish you well,
offer love, support, concern,
you have never felt so helpless, so frightened, so alone.

There were question marks, asterisks, scribbles and arrows all over this poem when I found it, which suggests that it was another one written in the early hours. The scribbles tell me that it might have been one I wrote after first deciding to go back to bed, but then sitting back down aware that there was another idea or another line still stuck in my head. I’d have been more sleepy than I realised, hence the mistakes and scribbles.

It’s another poem about being ill. This one focuses on the frustration I felt at the fact that my heart worries had come back to trouble me and the fear I had about just how bad I felt post operation.

When I first got poorly having had an episode of palpitations and dizziness in May of last year, I remember explaining to my wife that it frightened me and that I was determined not to end up back in hospital. A month later I was in hospital having tests on my heart. And then, just the other day I read a Facebook memory about a run I’d done in training for the last 10k race that I ran. It was early October of last year and I’d just done my last training run of about 12k and commented that I’d do anything at all to avoid anymore trips to the cardiologist. Sadly, less than a month on, I’d not only collapsed, but had been admitted to hospital to be told the next day that I’d have to have my pacemaker fitted. Life comes at you fast, as they say!

Fingers firmly crossed, but I feel better than I’ve felt in a while, despite a small setback about a month ago. Here’s to less heart-related poetry!

The Pacemaker Diaries: We’ve definitely hit a bump in the road.

Every once in a while I’ve written an update of what I called my ‘Pacemaker Diary’ over the last few months. It’s mainly because it’s a good way for me to have a bit of a moan, but it also fills people in on how things are going and means that there might just be a few less people that I have to lie to and fob off by telling them I’m ‘getting there’. I mean, if I had a pound for every time I’d said that since November, I’d be a millionaire. I’d also be very annoyed at myself for not discovering this get rich quick scheme a lot earlier.

I thought I’d update simply because a lot of them so far have been about progress, however small that’s been. But lately, my progress has slowed to a crawl again. Maybe writing about it might help me find the motivation that’s needed to keep moving on. Or maybe it’ll help me to ‘frame myself’ as some would say in our part of Yorkshire.

It’s been a shock that such a small thing could derail me so much. But initially it was a slight cold that slowed me right down. It was a couple of weeks ago that I was aware that I was slowing down again. I couldn’t go upstairs without feeling out of breath and had a hint of a cough. So it wasn’t a heavy cold, but it was having an effect on me.

At the same time I’d stepped up the hours of teaching on my phased return to work, taking on an additional class and four extra hours of teaching a week. That weekend the football team that I coach had its game cancelled, leaving me with a free Sunday. Rather than rest, I decided to go for a run in the early morning sunshine. Boy, would I regret that.

I hadn’t even ran a mile and I was struggling. But, I kept on going. Not long after though, a little voice in my head was telling me that I couldn’t do this. It was a voice that dominated me when I was younger, but one that I really hadn’t heard in years. Still, I kept on until faced with a long hill to run up, I decided on a compromise. With my body aching and struggling to breath steadily I re-routed, doubled back and avoided the hill, settling for running a 5k (3.1 miles) rather than the 4 miles I’d been aiming for. It was slow and ragged, but worst of all, I didn’t enjoy even one step of it.

I only just made it. My legs felt like they were falling forward independently of the rest of my body and I was wheezing heavily. I was alarmed by just how I terrible I felt. I took a photo of myself when I’d finished and it horrified me when I looked at it later. I looked haggered and old. Everything hurt and it left me feeling very down. My body continued to ache well into the next week.

On the Monday at work, my Year 7 form were added to the mix on my timetable and even on the first day of that happening I was struggling. I’d had a poor weekend, not really sleeping and struggling to shift the tiny bit of cold that I’d picked up. On the very first day of the week I put in a request to have my last lesson of the day covered in order to head home early. Work, as ever during this whole nightmare, were kind and obliging. A great start to the week though and enough to show me that getting back to a full teaching timetable might have to be a way off yet.

I’m also struggling with a back problem that had first hit me in February. I’d bent down to pick up my son’s football boots and been hit by nausea inducing levels of pain as my back froze. I’ve struggled with my back for many years, so I though it would pass within a week or so, but it hasn’t. Instead, even as I write, I can feel pain in my hips and hamstrings. The pain has moved down my body and in way, I feel more fragile than ever. Nothing to do with my heart – for once – but enough to begin to get me down.

The next weekend brought even more problems and no run, making me feel like any recovery had very much ground to a halt. I seemed to have picked up some sort of bug and felt dizzy and sick the whole time.

My heart continues to just plod along nicely, kept in check by the little machine that sits just underneath my left collarbone. The scarring hurts still, but that feels like the least of my worries.

The most frustrating thing of all is that my heart feels fine. However, having hidden the problem for around 6 months last year and then had to take so long off work after my operation, my body might just be a little bit broken. Clearly working for so long with the problem has really cost me. Clearer still, spending four months at home, only managing a daily walk while being otherwise inactive doesn’t keep your fitness at the levels you might need, however much you might kid yourself.

I’m quickly learning that my body is going to take much, much longer than I thought to heal. It feels like the slightest little problem, like a cold or a stomach bug, is going to have a huge effect, setting me back if not to square one, then square 3 or 4 at best. Impatient as I am, I wanted to be just stepping off square 25 by this point. As a result, I’m angry and sad and I really don’t like feeling that way.

I’m hopeful that the coming weeks will go better for me. I’ve rested and not gone out for a run for over a week, but I hope that I’ll feel ready enough soon to get going once again. I’ve entered a 10k race in May and am desperate to take part. It’ll really hurt if I’m not able to do it.

Poetry Blog: ‘Reach’.

A couple of weeks ago I posted a poetry blog and a bit of an angry rant of a poem called ‘Simple as that’. That one was a poem about the troubles I’ve had with my heart in the last few months. Well, apologies because I’m writing about the same thing again. I suppose this is inevitable as my health dominates every day at the moment, but I’m sorry if this seems like I’m raking over old ground. You can take it from me though, there’s a lot to talk about on this subject!

This poem is, in a way, the partner poem to ‘Simple as that.’ Where that one was pretty much furious in tone, this one could maybe be viewed as me feeling just sick and tired of it all. It’s one written when I wasn’t sleeping so well, so probably written around 2am one Winter morning and I would have felt like just giving up.

Anyway, have a read.

Reach

You're not quite in any kind of hell, 
and while you're very definitely moving forward
it's sometimes hard to tell,
like trying out the treadmill in diver's boots,
a head full of questions, but no answers
and of other people's made up thoughts and opinions
as the paranoia kicks in and leaves its mark
alongside all of the other scarring.
Suddenly mortality is on the agenda
and you sleepwalk your way through hours, days,
contemplating just how long you might have left.
Every stretch, every reach, every twist is some kind of pain,
the opportunity to hold someone who matter has gone,
replaced by something tentative, mechanical.
Some days are more positive, so you lose yourself in song,
contemplate enjoying things again
and force yourself not to think that you're just glad to be alive,
because that particular platitude feels like nothing more than consolation.
Every piece of good news and every milestone is blighted by doubt.
One day things will be normal again,
your smile not forced, the back of your mind not crowded with clouds.
For now, moving on is just out of reach.

At the time of writing this poem it just felt like I was never getting better. Yes, I’d be able to do a little bit more every day, walk a little further, maybe even do some dishes, but I found it very frustrating. I’d gone from being very fit and capable – for my age – to being very slow and poorly and old! I really didn’t enjoy this at all!

I’d been told not to raise my left arm above my head for at least a week, for fear of dislodging my pacemaker wires, and that this was a process that would be difficult and uncomfortable for 6-8 weeks. Six to eight weeks of having pain when you lift an arm up! It meant that shaving, washing, washing my hair etc were difficult to say the least and I needed help getting in and out of my clothes. I mention mortality in the poem; not because I thought I might be nearing my end though. It was just that I used to be out on my daily walk, knowing that when I got home the day would be more or less at its end as I wouldn’t be able to do a lot more. It felt like I was wasting time and I began to think about that in terms of having already probably lived half of my life. It was just about what I’d be able to fit into what was left, I suppose.

Things have got better. I’m nowhere near where I want to be but know that it’s going to about steady progress with the odd stumbling block. I hope you liked the poem.

Poetry Blog: ‘Simple as that’

When I was ill – think death’s door to ramp up the drama, dear reader – I had numerous sleepless nights and chunks of these solitary hours were taken up by writing poems. Although I talked a lot about what was going on with my weakling heart, there was still a lot left unsaid. You can’t burden people with everything that’s going on in your head, can you?

As I began to get better and slept more, I sort of forgot about these poems. Some were repeatedly drafted, others clearly unfinished; snapshots of how I was feeling. Some were in a notebook, while others were scribbled down onto random bits of paper retrieved from our ‘drawing cupboard’ which still somehow exists, despite both kids being way beyond sitting at the table drawing. All were collected up and thrown together with the vow that I’d revisit them when the time was right. I took a picture of this one complete with scribbling, arrows, asterisks and late night handwriting. Quite a bit to decipher some months later!

This poem is a bit of a rant, to say the least and the more I read it back, the more I’m convinced I was channeling my inner John Cooper Clarke, yet without his gift for words.

'Simple as that.'

This heart of yours is having a laugh; it's as simple as that.
The sole aim of the holiday was just to relax
but your body wouldn't even allow that 
and instead you collapse at the airport, then
practically pass out on a promenade bench in the heat,
before having to call for help weeks later, 
when giving out paper became a bit too much for your health.
False hope in the hospital once again ended
when they then decided that your heart is need of being mended
and you're treated to an operation surely designed for pensioners
that you cannot help but keep on mentioning as
you're put on a ward with people 30 years older than you
and a crazed Slovakian, who laughs in his sleep and howls at the moon.
Consolation is thin on the ground, unlike the tea 
and the biscuits that shouldn't really be allowed,
you another have scar that is ugly and crap and in truth
your chest is beginning to resemble and Ordinance Survey Map.
Back home you discover a penchant for pyjamas that was never there before
style, much like your dignity has now been slung across the floor
and any remaining semblance of cool has been traded in,
there's no doubt about that, without so much as a crossed word,
let alone a fight and now, my friend, you look like a twat.
On top of this, you cannot leave the house without a hat
to keep you warm, cannot get to sleep until it's almost dawn,
cannot wash properly, cannot tie your own fucking laces, 
cannot walk down the street with anything other than shuffling paces,
you cannot run, you cannot dress yourself, cannot rant, cannot rave
and now you look like a tramp because you cannot shave
meaning that, as December looms with its festive banter,
your surprisingly white beard has you turning into Santa
and as life is forced down this prematurely ageing path,
this heart of your is having a fucking laugh.

So clearly I was a bit on the angry side then! And it’s easy to look back now and smile about it all, but believe me it was a horrible time in my life. Around 4 months of being stuck either in hospital or at home, feeling a bit sorry for myself, fending off peoples’ best wishes and enquiries and bein unable to do very much at all. And even before that, we were unable to enjoy a holiday because I collapsed in the airport. I suppose it’s all there in the poem! Apologies for the swearing if that’s offensive, by the way. Just words to me and words that had to be in there in order to capture my feelings, but I know some people don’t like that kind of thing.

I rarely bother with rhyme but in this poem I’ve made a conscious effort to use it. I was determined though that it wouldn’t be a simple rhyming poem. Instead, I opted for mixing up the rhyme so that while for large parts of the poem it’s quite traditional, occasionally I threw in a bit of internal rhyme just to mess with the structure. I wanted to do this just to try and reflect the disorder in my life at the time. I mean, for quite a while I never knew when I was going to simply fall asleep – often in the middle of a conversation – so it was hard to enjoy an ordered, planned day!

I wanted to present the poem as a bit of a rant and so there aren’t many end stops in there. Believe me though, when you’re sat on your own, wide awake at 3am, you can become prone to a bit of a rant, even if they have to be quiet ones!

As ever then, I hope you enjoyed the poem. Feel free to let me know what you thought!