Pacemaker – Middle Age Fanclub

The Pacemaker Diaries: It’s been two years.

You wouldn’t know it with the amount that I probably bang on about it, but I genuinely didn’t want having a pacemaker to define me. Still, I write about it, think about it constantly, find myself telling people things about it and frequently catch myself looking at my scar in the mirror or prodding away at the bit at the top of my chest where my wires are sticking up, right at the surface.

That said, a quick search of my posts tells me that the last time I wrote a ‘Pacemaker Diary’ was actually in November 2023, a whole year after it was fitted. So, even though it’s been mentioned in some pieces I’ve written since, maybe I’m not banging on about it quite as much as I imagine. Anyone I speak to regularly can feel free to correct me on that though!

I was prompted to write this post because of Facebook memories of all things. In the lead up to Christmas and New Year just gone it felt like every few days there’d be something popping up where I was thanking people for their support or updating friends on my progress. They reminded me of both how poorly I’d been and also how far I’d come and they made me do a lot of thinking about the little machine that sits in my chest.

It’s been over 2 years since I had the pacemaker fitted. I didn’t pay much attention to the anniversary this time around. Sometimes there’s just too much going on in life for you to pause and have a think about stuff. But those Facebook memories changed all that and made me want to write something down about what life’s like these days. Self indulgent? I don’t know really, but I guess if you think that way you have the option of clicking that little x in the corner of your screen and not reading on.

I think writing about it simply helps me get on with life, which might be a bit more understandable when I tell you what it’s all like.

The pacemaker makes me feel a lot more comfortable about life, that’s for sure. I hardly ever worry about my heart. But paradoxically, it is always there to remind of just how poorly I was and the long, long time that it took me to get better. On top of that it’s a constant reminder of how low it all made me feel and the worryingly negative effects it had on my mental health.

There are both positives and negatives when it comes to having this device though and those reminders on social media made me think about a few of them. The first is just a bit of a change, I suppose, although does feel slightly negative. These days, my heart literally thumps when there’s not really been a great deal of effort. I’ve noticed it when climbing stairs and also that when getting into bed and straightening out the duvet, once I settle down my heart will be thumping! As someone who had an unnaturally low heart rate prior to all this – one of the reasons for the pacemaker – that takes a bit of getting used to!

Having the pacemaker has really made me focus on my health and fitness to the point where I’m really quite obsessive and possibly even a little evangelical about running! Silly really, but it genuinely makes me feel strong being able to run, especially in actual races. I couldn’t recommend it enough, even though I’m aware it’s not everybody’s cup of tea!

Another negative is that I live with a heart monitor by the side of my bed. This makes me feel really, really old! The monitor doesn’t do much, but I’m aware it’s feeding data back to the hospital which still feels a little bit weird. As I mentioned earlier as well, I have another scar as well as a strange bit on my chest where my wires just stick upwards. It’s a neat little scar, but those wires spoil things and coupled with the big scar that I have on my chest from a childhood heart operation, it’s not a great look!

My condition means that I still get heart palpitations, albeit nowhere near as regularly as I was having them for large parts of 2022 before my operation. However now, when they come I can rest assured that the pacemaker will kick in after about 5 seconds and stop them. It’s still quite a frightening thing, especially when it feels like the pacemaker isn’t going to react. The thought of having them for untold hours and just trying to get on with my day while wondering if I was about to pass out is a memory that still lingers! Still, that pacemaker is reassuring though.

Another drawback is that my left arm and shoulder don’t seem to work very well anymore. My scarring is really close to my left shoulder and I assume that it’s affected things as I haven’t got full movement and my left arm isn’t as ‘strong’ as it used to be. I mean, it wasn’t strong anyway, but it’s just a bit pathetic nowadays!

The final gripe I have is with my aftercare. I’ve only had one follow up appointment with a cardiologist since it all happened. Even that wasn’t actually scheduled. It was an appointment about a 24 hour monitor I’d worn, but in between times I’d had to have my pacemaker fitted, so the appointment was made later because the cardiologist didn’t realise and had to spend a load of time reading my notes before actually seeing me! Since then – January 2023 – there have been a couple of scans done but no meeting with actual doctors, which feels wrong.

I have had a letter from my hospital saying that a planned appointment had been rescheduled for later in the year, but I hadn’t even been informed about the planned appointment, so it’s all a bit of a mystery really! Luckily, I feel fit and healthy but it is concerning not to be speaking to someone when we’re almost 2 years on from the last appointment.

All in all, it’s been a bit of a whirlwind. Two years of major change that, just when you think you’ve almost forgotten about it and are living pretty normally, comes back to haunt you via bloody Facebook of all things! Clearly, while this pacemaker doesn’t really define me, it’s never going to leave me either!

Running: The Morley 10k, 2023.

Last Sunday, the 8th October saw the second ever Morley 10k race. It marked a quite significant date for me personally too though, as it was almost 11 months since I had the heart surgery to have my pacemaker fitted.

It’s been something of an eventful (almost) year. Sadly more downs than ups too, but all of that has been well documented in other blog posts throughout the last 11 months. However, when I was in hospital I made a vow that I’d complete at least three 10k races by the time my one year pacemaker anniversary came around. Sunday was the third and it was significant because it had also been the last one I’d done before everything went wrong for me in October and November of last year. Here’s how it went.

I felt sick with nerves as I stood on the start line. My family were a only few metres away on the pavement and on more than one occasion it crossed my mind to go and join them and tell them that I couldn’t do the race. People felt too close, it was too warm and the hill that we were starting on looked as daunting as hell, even though I’d ran it countless times before. The day before I’d been genuinely excited about it, but now, around an hour and 10km away from the finish line almost everything was telling me just to walk home.

Start lines of races can be funny things for me. Sometimes, I stand there feeling genuinely intimidated. Everyone seems fitter and younger than me. They’ve got much better trainers. And when I’m feeling particularly sorry for myself, none of them have health problems like me, either. Stupid really, but that’s how it can be. On other occasions, you get the feeling that everyone wants everyone else to have the race of their life. The excitement is palpable and the atmosphere is infectiously positive.

Thankfully though, I talked myself out of any silly decisions and got myself across the start line bang on 9am!

It’s a hilly course and while I won’t talk you through every step, there’s a lot to talk about and almost all of it involves running. Firstly, quite a few of the town came out to show their appreciation of the nine hundred and odd of us who thought it was a good idea to be up and running so early on a Sunday morning. Perhaps they were a bit bewildered by it all and who could blame them, but I really hope that the event grows and grows and becomes a staple for both runners and residents, because it was genuinely lovely to see people out cheering us on and from a personal point of view, it’s a real boost. I still don’t believe the stewards who shout out stuff like, ‘You’re looking good!’ as I pass, but by God their positivity helps! For the record though, I generally look like a tall, skinny bloke whose head has been replaced by a sweaty red balloon when I’m running, so cheers to anyone who puts a positive spin on that!

On Sunday, it quickly became apparent that my legs weren’t feeling too powerful. If you’ve seen them, you’ll know why! But I’d put the training in; plenty of runs, lots of hills, lots of 10ks and lots of other exercise. So, it was a bit of a puzzle, but I just put it down to my mood more than anything else and tried to relax as best I could.

Having got through the first long climb, we turned right and ran through Morley town centre and then down the hill towards Morley Bottoms. The flat and the downhill was much appreciated and gave me the chance to gather my thoughts a little bit, as well as picking up a little bit of pace. By the time we came to another long climb I was well into my running and it felt like I was coping well. It helps knowing the route so well, although I hadn’t ran it this year in preparation, but I’d had plenty of practice at hills as it can feel like that’s all Morley is at times!

Once we’d climbed said hill it was time to double back on ourselves and the race takes to the other side of the road and back down again. By this point several of the leaders had long since passed us as well as probably a couple of hundred others who all looked like they were coping better than me! I opened my stride a bit on the downhill section and, realising that we had at least a mile of downhill or flat sections, decided that it was time to start finding a bit of pace. Halfway back down the hill I spotted something on the other side, still climbing the hill that spurred me on even more – someone running in a T-Rex suit! Dodgy heart or not, I was not being caught by that!

I knew that picking up the pace could be a risky strategy though. I didn’t feel quite right and was wary of simply running out of steam by the end when, surprise surprise, you head up a really steep incline to the finish. That said, I knew my family would be waiting anxiously at the end of this section, given my health issues and so I felt it was better to get to them sooner rather than later.

Morley Bottoms on race day is fantastic. Just a wall of noise and smiling faces. It felt great to run through and although I couldn’t see my family for a while, I spotted them eventually and gave them the thumbs up as I actually wasn’t feeling too bad. Shortly after passing them was the halfway point and knowing the route, it felt like the end was almost in sight.

My plan from the start was to try and run around 55 minutes, but it wasn’t long before the pacer had passed me. However, by the time we’d got to around 4 and a half miles I’d caught him again. Sadly, as we began to climb another hill, I lost him once more! I stayed optimistic by reminding myself that the T-Rex still hadn’t caught me though!

By the time I got to Morley Bottoms for the second time and almost the finish, the place seemed to have got even louder and more enthusiastic. I was feeling genuinely sick though, so the noise and the fact that a couple of people – cheers Steve and the lass that I didn’t recognise! – called out my name, which again was a timely boost. I was almost there.

The hill up from Morley Bottoms turned into my own personal Everest! It’s so steep! Virtually all strength drained away from my legs straight away and it was a case of just keeping moving. I almost convinced myself to stop and walk, but kept going as there was so much encouragement and I was utterly relieved to reach the point where it evens out a bit.

As we passed the town hall I heard my family before I saw them and again it provided a timely boost. Bizarrely, it prompted a sprint finish from me too, something I didn’t realise I had in my locker any more at my age. The heart didn’t matter, the tired legs and aching body were of no concern and by the time I crossed the line I was catching the few people in front of my having gone past one or two in the last hundred yards!

I thought I’d be emotional, but wasn’t. I was just elated. The time wasn’t quite what I wanted, but it wasn’t half bad for a bloke with a dodgy heart and pipe cleaners for legs. And anyway, when everyone looks so pleased and the whole town is out cheering you on, it’s kind of difficult to start crying in front of the post office!

So clutching my medal and my bag of sweets – they’d ran out of water, apparently – I scanned the crowd until I found my family again, reassured the kids I was ok, had some photos taken and then we all wandered off happily back down the inevitable hill to go home.

Big thanks to Morley Running Club for everything they do to put this brilliant event together. Same time next year?

The Pacemaker Diaries – summer’s been a bummer.

A bit of a cathartic post, this one. I’m aware that I’ve written a lot about my heart surgery last year and I’m aware of the fact that it might just be getting boring. It’s getting that way for me too. But despite my many quiet vows to not let the pacemaker define me, it’s kind of a tough one that! So this post is sort of cathartic because it allows me to vent my frustrations as well as publicly celebrate my successes, however minor they might have been.

So, my recovery continues. I’m still very aware of my pacemaker; you can literally see it when I take my top off (steady ladies), there’s a scar that looks red raw when I’ve done any exercise and more than anything else, I can just feel it sitting there in my chest. It doesn’t hurt or anything like that, but it does get sore after exercise or if I’ve had to take on any lifting.

Thankfully though, I’m now running regularly. I manage to get out twice a week and have been pretty much exclusively running 10ks recently in preparation for an upcoming race. That race is the Morley 10k, which I ran in October of last year before collapsing a few weeks later and then finding myself in hospital a few weeks after that. So all the omens are good! At the time of running it, I felt good and strong and despite the fairly undulating course and the fact that I was actually very poorly, managed a time of 54 minutes! I don’t think I’ll get anywhere near that this time around!

That said, for a recent hilly 10k that I ran around town, I clocked a time of under 57 minutes, so I’m not actually too far short of pushing for a similar sort of time as last year. Maybe, with a decent tail wind for the last couple of miles, I can achieve something worth shouting about. It would certainly help me get past the whole ‘woe is me and my pacemaker ‘ thing!

My body continues to frustrate me though. As far as I’m concerned, I’m out of shape and carrying a bit of a belly, although my wife tells me I’m being ridiculous. When I’m feeling more rational I can put the aches, the pains and the belly down to middle age, but I still feel unhappy with it and I’m fairly sure that had I not had the health issue that I’ve had, I would be in a lot better shape physically. Four months off work with nowhere near enough exercise and far too much snacking has clearly taken its toll and I’m struggling to get back into shape.

I found summer really tough and for long periods felt as low as I can remember ever feeling. As is my habit, I tried to hide it from everyone and seemed to be getting away with just being labelled occasionally grumpy, but if I’m honest, I just couldn’t cope with it. Running kept me sane and when I was out on those early mornings I hardly had a care in the world. But at home, on holiday, visiting family, I just felt awful. It wasn’t anyone else’s fault. I felt impatient with those around me and angry at what’s gone on since last year with my health. In terms of recovery, being so frustrated and angry really doesn’t make things easy and I’ve genuinely felt like I couldn’t move on.

The peak of it came when I just felt I had to talk to someone. Not like me at all, but I knew I had to try. I tried repeatedly, but something always got in the way and then one afternoon while she was at work and I was at home, my wife called me about something and I just confessed to how incredibly sad I felt. She’s been brilliant!

Talking a lot has certainly lightened the load, but I’m still considering counselling or just joining some kind of support group. I did this when I first got my pacemaker as I really struggled with what felt like the injustice and the worry of it all and it did me the world of good to hear from other people in the same situation and just to share a few things.

Part of the reason for the summer being such a tough time was that I stepped down from coaching my junior football team. The club wanted me to get rid of 4 players in order to make space for others that they were dropping down to us from our A team and I just wasn’t going to do it. I hoped they’d see reason, but when they didn’t I walked away on principle. I’d always tried to be a totally inclusive coach and when the club decided to release players based on ability, that was enough for me. They tried to dress it up as something else, citing players commitment as a reason, but it simply wasn’t anything to do with it.

I’d coached the team for 7 years and loved it. It had always helped me with my physical fitness and mental health too and so to lose it hit me hard. I managed to get a couple of the players that were dropped fixed up with a new club, but the fact that I could no longer coach kids I’d coached for years and years – including my own son – knocked me for six and just deepened the sadness I was already feeling.

The issue dragged on a bit because parents were actually on my side and so there’s been a lot of complaints flying around. However, the club have actually emailed one of the parents of a lad who was dropped and told some rather creative lies about me while being incredibly loose with the truth about what actually happened. I could have got very angry, but I’ve just decided to leave it. If it makes people feel better about themselves to tell blatant lies, I haven’t really got the time for that in my life. Not at the moment. Talk about kicking a man when he’s down!

I still go to watch the team, as my lad still plays and most of the squad are still ‘my’ players, but I just won’t have anything to do with the people at the club now. One or two in particular should be thoroughly ashamed of themselves, but I guess that some people are just never in the wrong! Karma can be a bitch though, so we’ll wait and see!

For now, I’m just trying to be as positive about life and recovery as I can. I’ve thrown myself into work and whether I’m happy or not, I’m trying to be as positive as is possible. So, I’ve dug out my Disney teacher voice for the new year 7s so my natural grumpiness doesn’t scare them and I’m putting positive comments on our ClassCharts whenever I think someone’s done something good. I’m trying to make sure that I explicitly praise as many students as possible whenever they’ve gone beyond the ordinary and I’ve not sent one email about how pointless a meeting is yet! I’ve even been early for a few of them as well. Inner me’s not particularly fooled, but the positivity is genuinely helping. It probably sounds stupid, but while I’m being positive, I’m not being negative and not feeling sorry for myself. Does that make sense?

So life, as ever, is full of ups and downs. And while there are a few too many downs for my liking at the moment, I’m hoping to work my way out of the way I feel before the end of the year. In November I’ll have had a pacemaker for a whole year and if I’m honest, it is a comfort. As far as I can tell, the old issues with my heart are fixed. Now, however difficult I find it at times, it’s just time to get on with life again in the best way that I can.

Poetry Blog: ‘Routine’

It’s been a while since I wrote any poetry. Anything complete, that is. There are several pages of notes and drafts in various notebooks and on my phone, as it goes and I definitely need to find time to get some of them finished. I know that there are notes and stuff because I’ve just looked. Every so often when I look I find one that I remember little or nothing about, although they’re usually from some stage of my time at home recovering from heart surgery last year.

Today’s poem is one of them. On first view it looked more or less complete, but once I read it again I made a few changes and additions and came up with what’s below. It’s a poem about the frustration of the every day routine, when the every day routine is slow, dull and painful.

Routine

As the gulls cry above
they seem to mock you,
gliding as they do, freely,
uninterrupted across another slate grey sky
almost laughing at the state you're in.

Beneath there is no flight, no such freedom
as you struggle through the curtained drizzle,
checking your pulse, taking deep breath after deep breath,
careful to slow your steps 
and evermore conscious of how helpless you must look,
knowing that you will collapse like a man at the end of a month long expedition,
somewhat gasping and groaning at your discomfort,
but trying to hide your fatigue 
as you return indoors
where only the slow death march of daytime TV
and snacking await.
The beard, the boredom and the bitterness
that come with early onset uselessness slowly grow,
the ticking of every clock in the place 
the only soundtrack to both your thoughts and your days,
while you sit, restless, clueless about how this all came to pass.

I’ve no idea when this was written. It could have been any of several weeks where I just couldn’t see an end to the weakness and fatigue that I felt. What I do know is that I felt angry. Livid at the fact that while having a pacemaker fitted was undoubtedly essential for me, it came with no real warning. I never would have suspected that the palpitations and dizziness I’d been experiencing on and off for months would have needed anything more than tablets to be sorted out. Maybe that’s why I’m an English teacher and not a cardiologist!

While I’m still a little angry and frustrated, the days of freezing cold, lonely walks are long gone. And while I’m not as healthy as I’d like to be, I’m a lot better than whenever this was written.

I’m gradually coming to terms with the changes that surgery has brought about and slowly recovering, although I think it’s going to be a lot longer before I feel quite myself again. So the poem is reflective of the kind of bleak times that I rarely, if ever seem to have anymore, but it intrigued me when I found it.

Anyway, I hope it made for a decent, interesting read! Feel free to leave a comment.

The Pacemaker Diaries: Summer Edition!

It’s been a while since my last Pacemaker Diary entry, so with a bit of time to kill and a few tings to update, I thought I’d write another.

In my last entry, in April, I wrote about hitting a bit of a bump in the road. I’d had to abandon a run, was suffering with dizziness and a general feeling of tiredeness and just generally wasn’t really coping with the whole ‘adjusting to having a pacemaker’ thing. I’d been back at work for around a month and was beginning to feel like I might not make it through to summer.

https://middleagefanclub.wordpress.com/2023/04/09/the-pacemaker-diaries-weve-definitely-hit-a-bump-in-the-road/

Well, it’s now summer. Two weeks into the holidays to be precise and while I’m nowhere near as fit and healthy as I had been pre-pacemaker, I’m still slowly getting there. Obviously, this is incredibly frustrating. You might argue that I should have gotten used to how my body feels and reacts to things by now. After all, I had my pacemaker fitted about 9 months ago. But, dear reader, I’m not used to it and that’s all there is to it. Or rather, I am used to it but I still absolutely hate the whole idea of it! It’s wonderful to still be here and I’m eternally grateful to the NHS and the staff at the hospital that helped me through and indeed the ones that still help when I have some kind of appointment, but I can’t change how I feel.

The phrases “I’m getting there” and “It’s just going to take time” have become as much a comfort as they have a pain in the arse, but I have to just keep reminding myself – and sometimes others, who don’t seem to get it – that I am indeed getting there and that this whole process of feeling myself and feeling fit again is jus going to take time! Friends who’ve gone through the same or similar have told me on numerous occasions that they didn’t feel themselves again for a long, long time and I suppose I’m simply finding out about how true that is!

Anyway, enough of the moaning and moping. There are some positives to discuss!

For one, I’m still running. It’s been a while since I had to be mature and force myself to take a break and as a result my fitness is consistently okay. It’s not great, but it’s okay…didn’t Whitney Houston once sing about that or something similar? Perhaps, that’s not a good thing…

I’ve been uncharacteristically sensible about my running for the past 4 or 5 weeks and have built up my distances really steadily. So, perhaps I’m tempering my frustration and anger a little bit after all.

Having completed the Leeds 10k in late June I took a break and haven’t ran that distance since. Instead, when I got back out I settled for running just 5ks for a couple of weeks and then built the distance up from there. I still haven’t managed another 10k run, but I think I will do soon as I’m consistently running over 5 miles. There have been varying results pace-wise, but I’m feeling more than capable of getting round the distance. It’s still reeeaaallly frustrating to see how slow I’ve ran at times, but I just have to cope!

I ran while on holiday recently, taking on some huge hills in North Wales, while receiving curious looks from llamas on a local farm! I ran for 5 miles, finishing on the beach and felt fantastic afterwards, but I made sure that I gave myself lots of recovery time and didn’t go for a second run that week which was a relief and a bit frustrating in equal measure! However, the change of scenery and obvious challenge felt like it did me the world of good.

After every run I’m on to planning my next one and genuinely feeling like I can go further. I was out earlier this week and managed 5.3 miles and I’ll be out again this weekend. I’m hoping that this one can be my first 10k since June, but we’ll see how the body reacts over the next couple of days.

I managed to damage my lower back around a month ago and then just when I felt it was almost better, injured it again. The first time was while leaning out of my chair at work to pick up something I’d dropped and then the second time was while getting something out of a cupboard in the kitchen! Both dangerous and high stakes activities, I’m sure you’ll agree but as frustrating as this is I guess it just comes down to having a battered, middle aged body, so I’ll have to cope!

As part of getting my back better I’ve started doing yoga again. It was something me and my wife did years ago and both felt we benefitted hugely from it. But time constraints and a young family got in the way and it fell by the wayside. However, my wife recently suggested a few moves that might help my back and so yoga is back on the agenda. I’ve only managed a couple of very short sessions with the aid of my phone to keep me right on the positions, but I’m hoping it will start to help with my health. It’s a bit more complicated as anything that means putting weight or pressure on my left hand side results in my pacemaker digging into me, but I’d take that over palpitations and blackouts any time!

I’m also hoping that yoga will help with my mental health. I’ve had lots of support in recovering from surgery and adapting to this new almost constantly fatigued, old body. However, it’s still been incredibly tough and I’ve felt isolated and sad throughout. The running has helped as I’m alone with my thoughts and can resolve a lot of stuff while I’m out. But I’m hoping that yoga – however bitesized it might be – will help me feel a lot calmer and relaxed about things.

So, there we have it. I have my next 10k race planned for October and am wondering about entering another before that. Either way though, I’m just hopeful that I can stay fit and healthy for long enough to feel that I can go back to work again in September feeling a bit brighter about things and then have a real go at the October 10k. As ever though, it’s just nice to still be here, however difficult things might seem and however low I might get at times!

The Pacemaker Diaries: We’ve definitely hit a bump in the road.

Every once in a while I’ve written an update of what I called my ‘Pacemaker Diary’ over the last few months. It’s mainly because it’s a good way for me to have a bit of a moan, but it also fills people in on how things are going and means that there might just be a few less people that I have to lie to and fob off by telling them I’m ‘getting there’. I mean, if I had a pound for every time I’d said that since November, I’d be a millionaire. I’d also be very annoyed at myself for not discovering this get rich quick scheme a lot earlier.

I thought I’d update simply because a lot of them so far have been about progress, however small that’s been. But lately, my progress has slowed to a crawl again. Maybe writing about it might help me find the motivation that’s needed to keep moving on. Or maybe it’ll help me to ‘frame myself’ as some would say in our part of Yorkshire.

It’s been a shock that such a small thing could derail me so much. But initially it was a slight cold that slowed me right down. It was a couple of weeks ago that I was aware that I was slowing down again. I couldn’t go upstairs without feeling out of breath and had a hint of a cough. So it wasn’t a heavy cold, but it was having an effect on me.

At the same time I’d stepped up the hours of teaching on my phased return to work, taking on an additional class and four extra hours of teaching a week. That weekend the football team that I coach had its game cancelled, leaving me with a free Sunday. Rather than rest, I decided to go for a run in the early morning sunshine. Boy, would I regret that.

I hadn’t even ran a mile and I was struggling. But, I kept on going. Not long after though, a little voice in my head was telling me that I couldn’t do this. It was a voice that dominated me when I was younger, but one that I really hadn’t heard in years. Still, I kept on until faced with a long hill to run up, I decided on a compromise. With my body aching and struggling to breath steadily I re-routed, doubled back and avoided the hill, settling for running a 5k (3.1 miles) rather than the 4 miles I’d been aiming for. It was slow and ragged, but worst of all, I didn’t enjoy even one step of it.

I only just made it. My legs felt like they were falling forward independently of the rest of my body and I was wheezing heavily. I was alarmed by just how I terrible I felt. I took a photo of myself when I’d finished and it horrified me when I looked at it later. I looked haggered and old. Everything hurt and it left me feeling very down. My body continued to ache well into the next week.

On the Monday at work, my Year 7 form were added to the mix on my timetable and even on the first day of that happening I was struggling. I’d had a poor weekend, not really sleeping and struggling to shift the tiny bit of cold that I’d picked up. On the very first day of the week I put in a request to have my last lesson of the day covered in order to head home early. Work, as ever during this whole nightmare, were kind and obliging. A great start to the week though and enough to show me that getting back to a full teaching timetable might have to be a way off yet.

I’m also struggling with a back problem that had first hit me in February. I’d bent down to pick up my son’s football boots and been hit by nausea inducing levels of pain as my back froze. I’ve struggled with my back for many years, so I though it would pass within a week or so, but it hasn’t. Instead, even as I write, I can feel pain in my hips and hamstrings. The pain has moved down my body and in way, I feel more fragile than ever. Nothing to do with my heart – for once – but enough to begin to get me down.

The next weekend brought even more problems and no run, making me feel like any recovery had very much ground to a halt. I seemed to have picked up some sort of bug and felt dizzy and sick the whole time.

My heart continues to just plod along nicely, kept in check by the little machine that sits just underneath my left collarbone. The scarring hurts still, but that feels like the least of my worries.

The most frustrating thing of all is that my heart feels fine. However, having hidden the problem for around 6 months last year and then had to take so long off work after my operation, my body might just be a little bit broken. Clearly working for so long with the problem has really cost me. Clearer still, spending four months at home, only managing a daily walk while being otherwise inactive doesn’t keep your fitness at the levels you might need, however much you might kid yourself.

I’m quickly learning that my body is going to take much, much longer than I thought to heal. It feels like the slightest little problem, like a cold or a stomach bug, is going to have a huge effect, setting me back if not to square one, then square 3 or 4 at best. Impatient as I am, I wanted to be just stepping off square 25 by this point. As a result, I’m angry and sad and I really don’t like feeling that way.

I’m hopeful that the coming weeks will go better for me. I’ve rested and not gone out for a run for over a week, but I hope that I’ll feel ready enough soon to get going once again. I’ve entered a 10k race in May and am desperate to take part. It’ll really hurt if I’m not able to do it.

Pacemaker Diary: First week back at work? Completed it, mate…

A couple of weeks ago, when I started back at work again it had been 108 days since I’d had a full day at work. On Monday 7th November, 2022 I’d become unwell in my classroom, suffering with heart palpitations and ending up in the Accident and Emergency department of the Leeds General Infirmary. Later that night, I was admitted to a ward. And so it began…

At that point, I thought I’d have to have a few days off work. That wasn’t to be. Even when I received the news that I would be having a pacemaker fitted though, I reckoned I’d be back in my classroom within a week or so. So, the 108 days ‘rest’ has been a tough one to swallow. It’s kind of exposed my lack of medical knowledge too!

My employer has been amazing about everything. While I was off I was regularly reassured that I just needed to take whatever amount of time was needed in order to get better and every time I said that I felt guilty for being away from work, I was told to stop it! Each time I submitted a new sick note they reassured me that it was no problem at all.

Then, when it came to the time to think about starting back, they put a plan for a phased return in place. It’s a flexible plan that just depends on how I’m feeling and it has eased me back in incredibly gently. This in turn makes me feel very guilty all over again, but I guess that’s just something I need to get over!

My first two days were treated as KIT (Keep In Touch) days, designed for me to just get used to being back in the building, really. So there was no teaching. In fact there wasn’t much at all. But, as I quickly found out, I needed to just get used to being around the place and the people.

On my first Monday, I was beyond nervous as I drove in. My hands were shaking and I felt physically sick, even though I’m always very comfortable at work. However, as I attended our morning briefing it was genuinely lovely to see so many friendly faces and speak to people who were pleased to see me back at work. Literally nobody knew I was ill at the time and so I think it had come as a bit of a shock to more people than I would ever have imagined. There were handshakes and pats on the back aplenty and it really helped to settle the nerves a bit. So thanks, if you were one of those people.

Those first two days were largely spent sat at a desk in our English office, clearing emails and reading through lessons, just to get back up to speed a bit. I tried to stay in there as much as I could get away with as I was finding being around larger groups of people a bit overwhelming. Having spent nearly 4 months being on my own a lot of the time, 900 kids and over 100 staff was a bit of a culture shock. A far cry from shuffling around the local park and muttering to myself about dog walkers!

On Wednesday I taught my first lesson. It was only Year 7 and only an hour, but it felt amazing. I surprised myself with how easily I slipped back into teacher mode and I thoroughly enjoyed myself, despite the presence of an Ofsted inspector in the room next door! I was assured that they wouldn’t be allowed to come into my lesson, but I still feared that they might just go rogue!

By the end of the hour I was exhausted. My mind was racing, but thankfully my heart wasn’t. My legs were like jelly and I felt like I’d done some kind of comprehensive workout. I’d taught a lesson which felt fantastic, but more importantly, I’d taught it in the room where I’d become ill on the day when I ended up in hospital. I was very concerned about being back in there, but it was OK. So far, a couple of weeks on, there have been no flashbacks either. It’s not that I thought there would be, but these kind of things happen all of the time on the telly, so you never know! Maybe I’ll add the flashbacks in when the inevitable call comes in to make the film of my dramatic pacemaker journey!

I was supposed to teach another Year 7 lesson immediately after the first one, but I knew part way through the first that I wouldn’t be able to do it. Luckily there was already a cover teacher in place; another example of how work are looking after me.

I left work every day that week at around 11.30am to go home. I can’t thank them enough for that. I genuinely feel that I want to be looked after. But I also feel conflicted by this. I know that the phased return plan is for the best, but it’s still frustrating in a lot of ways. However, as I’ve been told time and time again, I have to listen to my body and at the moment it’s telling me that while I’m well enough to be back in work, progress is going to have to be made with baby steps. So as frustrated and guilty as I might feel, I’m going to have to swallow my pride and be a big boy about it all if I’m going to get myself back to normal.

I’m happy to report that I had a lovely first week back at work. The fact that Ofsted turned up to inspect the school just as I was coming back is very much typical of my luck, but even that didn’t spoil the experience at all. My colleagues made sure that I was shielded from all of the stress and from my point of view, it was nice to be able to act as the voice of experience and pass on some words of advice at stressful times over the two day visit. It made me feel ever so slightly important again; something I haven’t felt in a while.

It was great to be back and feeling like I had a purpose. Better still to know that my body is just about standing up to the strain, even if I did leave yawning every day! I even snuck in an after work run on the Thursday because there was no one at home to tell me not to and it was a lovely sunny day. It felt great, even if when combined with a morning at work, it wiped out my afternoon. It reassured me though, that hopefully, I’m going to be alright. I just have to take things one day at a time. and stumbling step by stumbling step until I get to the top of this particular mountain.

Thanks to everyone who’s helped me through these last few months. Some of you will know who you are, while others won’t realise just how much they’ve helped. Thank you from the very bottom of my overly scarred, but machine controlled heart. And sorry again for what I’ve put you through.

Defining Recovery: It’s not as simple as just resting up.

The idea for this blog came from a tweet that I liked a few weeks ago. It popped up on my timeline just because someone I follow had liked it and I usually scroll straight past most of these ones. However, there was a picture of a man wrapped up, wearing a hat, out in the woods by the looks of things and it made me think of myself doing similar, day after day for these last few months.

The tweet read, ‘Healing is not as simple as ‘rest’. It’s exercising, rehab, falling down, fearing and going deep into the pain and fighting your way back.’

In a strange way, the tweet made my day. Since having my pacemaker fitted and spending months off work, I’ve gone through all manner of stuff, but have lost count of how many times I’ve felt the need to brush it off and tell anyone who’s asked that I’m ‘slowly getting there’.

Over 3 months on from my operation and I thought I’d try to explain my own personal experience of recovery. I haven’t fully recovered and I think feeling that way is actually a long way off, but I think I’ve managed to get myself into a position where I feel a great deal stronger, fitter and more confident about my heart. So, before I start to forget the things I’ve been through, I thought I’d get some of it down.

I didn’t think I’d done a lot of resting, until my family told me otherwise. I was talking about the fact that I thought I hadn’t really got many naps in during my time at home and it brought about a few smiles from those around me. Apparently, the truth is more that I was napping pretty much every day for the first three weeks of being out of hospital. And while in hospital I just felt like I lurched from nap to nap, even pretending to be asleep on a regular basis so that the bloke opposite wouldn’t talk to me!

So in fact, I’ve been so exhausted during my recovery that I can’t even remember how it’s been a lot of the time. The first few weeks are a blur. I know that they featured a lot of pyjama action, a lot of irritability on my part and, so I’m told, a lot of napping. I’m told that there were times where I’d just fall asleep mid conversation, which sounds a lot of fun. I also remember feeling very frightened by it all, worried that one wrong move would pull the pacemaker wires out of place meaning that I’d have to go back into hospital.

When my first sick note ran out – after a week – I had a telephone appointment with my doctor. This made me realise how poorly I was. We spoke for a good while and I felt like I was having to fend him off at times, as he alluded to me going back to hospital. Then, when he settled for just issuing another sick note, he instantly doubled the time that I’d asked for. This was good, in that it settled me down a bit while also making me think that I could find lots of things to do with all of that time. It became bad pretty quickly when I realised that I wasn’t strong enough to even sit and read for over long, before I was nodding off! It quickly felt like it would be a very long month.

There have been quite a few unusual times since then. While recovering, I seemed to develop a bit of a stutter and at times simply couldn’t get the words out. Furthermore, I’d find myself talking about something one minute, then unable to remember a word or where the conversation was going next. And people would tell me about things I’d said and done, but I literally couldn’t remember a single bit of it. And – as per the quote that inspired this – there’s also been a bit of falling down. It’s amazing how many times I’ve taken a tumble when just trying to tie my laces, but that left hand side of mine just wouldn’t work for a good few weeks!

The healing or recovery process has been one of the most frustrating times of my life. I joke about tying my laces, but there were plenty of times in the first couple of weeks where someone had to tie them for me. My wife had to help me get dressed, as well as undressed, including doing things like zipping up my coat and putting a hat on my head if we went for a walk! I hated it, but it’s definitely the kind of thing that keeps you grounded, in terms of how you think your recovery’s going! I found that lack of independence incredibly frustrating and it was something that I struggled to deal with as normally, if something needs done, I just do it myself. Then suddenly you’re in a place where you’re not allowed to even get a glass of water and someone’s started doing your jobs around the house. Awful!

A combination of beta blockers and lack of sleep (I think brought on by taking beta blockers) made me feel like I wasn’t recovering at all. Every day, I’d just feel like I’d taken another hit and was back to square one, which was kind of demoralising. I’d be out on a walk, feeling like I was definitely getting stronger, watching my heart beat not quite hit what it had the day before at the top of a hill and being able to walk just a little bit further and yet I still couldn’t sleep, still couldn’t remember things, still couldn’t hold a conversation without telling someone to forget it because I couldn’t remember what I was going to say!

I struggled to sleep for well over a month. It’s still hit and miss now, but when it was night after night after night, it felt like it might never go back to normal and that being awake until 3am might well be how it was now. As well as leaving me exhausted, it also had me worried that I wouldn’t be able to hold down a job. Because of this, for a good while it felt like my life was about to encounter an even bigger change and it was a fear that didn’t sit well at all with me.

By far the most difficult part of the whole healing process has been the mental side of things. I’ve always felt that I was mentally very strong, but for the last few months I’ve been filled with a kind of fear and doubt that I don’t think I’ve ever experienced before. I suppose it’s kind of a given that I feared I might die, particularly in the early stages when I didn’t fully understand what was going on and then again when I stopped taking beta blockers. I felt that they were absolutely crucial to keeping me safe and so although I was pleased to come off them, as I was assured that they were adding a lot to my fatigue, I was nervous about what could happen when they were taken away.

It’s been difficult adjusting mentally to not being at work. Alongside that though, has been a bit of fear about going back there too. My final episode with palpitations and extreme dizziness happened in my classroom and I’ve not set foot in there since. The prospect of doing so again fills me with trepidation, even though thinking logically, I know it’s not the classroom’s fault. Nor is it work’s fault. But both things terrify me. I went back for an attendance meeting recently and to discuss my phased return to work and despite having worked there for 8 years I was physically shaking when I entered the building. It took me more than an hour to feel anywhere near right again and it was only when I ventured down to my old department that I settled more.

I’ve suffered with guilt the whole way through my recovery. Having covered up what was wrong for over 6 months, I feel awful about what I put my family through. My wife and kids watched me pass out in the airport before we went on holiday, as the palpitations hit and that makes me feel horrible about myself. My daughter has watched me like a hawk ever since and it’s been a balancing act dealing with the guilt as well as stopping myself becoming irritable as she’s asked again and again if I’m alright.

But the guilt hasn’t stopped with my immediate family. I know that my mam and dad have worried too, as well as my sister. Come to think of it, I’ve probably had my most in depth conversations ever with my dad across the time of my recovery as he’s opened up a bit and made it clear that he was worried about me. Believe me, us northern men aren’t always so forthcoming when it comes to our feelings, particularly when we’re of my dad’s vintage!

I’ve struggled with similar feelings where friends are concerned. Nobody knew a thing and I’m not sure what people must think of me for not at least confiding in one of them! Friends from work have had to cover my classes, set my work and even learn to adjust to life without the kind of ridiculously inane emails that I send on a daily basis. I really can’t thank them enough. Knowing that my other kids – my classes – are in their safe hands has eased that particular side of my guilt, but it’s felt like a real struggle. I know people would tell me to not feel guilty, but it’s been hard to avoid.

In all, like the tweet said, recovering has not been as simple as just resting. In truth, it’s been the most difficult time of my life and I’ve had to adjust from being someone who genuinely felt a bit invincible to being someone who has had to face up to just how vulnerable he actually is. It’s not a process I’ve liked and not one I really want to accept, which means that while I head back to work very soon, I’ll have to continue to work hard at my fitness and any mental blocks that might just be lingering.

For now though, returning to work will bring a sense of normality, but definitely not an end to my recovery or any sense of being healed. If you see me at work and ask how I am, I’ll more than likely say ‘good’ or ‘better’. What I mean to say but can’t, is that I feel sh*t scared, utterly terrified, panic stricken at the thought of doing any of this again, as well as riddled with guilt because of what I feel like I’ve put family and friends through. But, to paraphrase the tweet that inspired this, I’ll continue exercising, falling down, fearing, going deep into pain and fighting my way back.

Top 5 Benefits of having a pacemaker.

(I’ve added a couple of bonus positives to my Top 5 too. I always manage to think of more than I need!).

Since having my pacemaker fitted in early November, there have been quite a lot of dark times. Some if them have lasted for days, others hours and lots of them mere minutes when I’ve felt really sorry for myself before snapping out of the fog of it all. Ultimately, I can always fall back on the fact that I feel quite lucky to still be here, however dramatic that might sound.

Today though, I’ve decided that this pacemaker lark can’t all be doom and gloom. Obviously there’s a good side – it’s making my heart work properly – but there must be a lighter side too; a side that makes me laugh a bit. Because the lighter side of life is the one I’ve always liked to be on.

So, I sat down and gave some thought to what might be the positives of the fact that I’ve had a little machine surgically embedded into my chest! Because everything has to have a positive, otherwise what’s the point of bothering, right?

So, as a result of having my pacemaker…

I can now tell people I’m part robot. That way, I sound cool, futuristic and I am easily the closest thing I know to Steve Majors, the $6m Dollar Man. When I get back to work I can tell amazing stories about what I’m/it’s capable of. I can make up ridiculous tales to tell classes because experience tells me that they’ll believe practically anything you tell them as long as you can keep a straight face. Come to think of it, I can easily get away with this type of thing with some of my younger colleagues too, as they tend to be quite gullible. I don’t mean that as an insult, they just are and I know this because of the sheer amount of bullshit I’ve told them over the years!

2. I got to grow a beard. I’d never had any interest in growing one before, but during my hospital stay, I couldn’t really shave on account of being attached to a heart monitor. I could have taken it off, but then I ran the risk of having nurses knocking on the bathroom door. I found this out to my horror one time when they were frantically hammering on the door because my alarm was going off and the panic was so evident that even I thought I might be dying, even though I was stood on the other side of the door just having a wash! So, I didn’t bother shaving. Then, once my pacemaker was fitted my left hand side was rendered useless, again ruling shaving out. Before I knew it, I had a beard and to my surprise I really liked it. Thanks, pacemaker!

3. I may be able to get work as Santa later on this year. My cool beard is a great deal more white than I’d like. But, if I can work on my “Ho, ho hos” and other such stereotypically Santaesque dialogue, I might have a rather rewarding sideline come December.

4. I’ve watched a lot of daytime TV, especially in the first four weeks or so of my recovery when my days consisted of getting tired out by washing and eating breakfast and napping. I mean, there had to be something in between. And so, I’ve become a connoisseur of shows on Discovery and Sky History, as well as every show that revolves around buying a house somewhere sunnier than England. I still can’t bring myself to watch ‘Come Dine with Me’ though.

5. I can move to the wilderness with my new found skills. For the first few weeks of my recovery I made a regular 10am appointment with the Raney family and their show, ‘Alaska Homestead Rescue’. From doing so, I’ve realised that all you need to survive in the wilderness appears to be a good roof, a gun to shoot bears with, a greenhouse (who knew?) and probably some sturdy fencing. With a good 7 years on my pacemaker battery, I’m toying with the idea of buying some land in Alaska and moving off grid!

6. I’ve discovered a love of pyjamas. For years, I had refused to wear them. But, having lived almost exclusively in them for weeks, I can tell you those PJs can be a hard habit to break. Even when proper clothes became an option again, I’d regularly head upstairs in the middle of the afternoon to pop my pyjamas on again. And while I feel like, months later, I’ve broken my addiction, I’m still strangely fond of wearing those comfy beauties!

7. I’ve been given a bit of time to re-evaluate – work, fitness, lifestyle, food and drink. Serious stuff now. Although there’s no damage to my heart and I’ve been told that there isn’t a risk of heart attack, I’ve decided to change a few things. Although I wasn’t a big drinker, I’m cutting right back. I’ve been forced to anyway, so I may as well just carry on. I’m trying valiantly to watch what I eat as well and last week I created a new milestone in my life when I cooked a stir fry (the first I’ve ever cooked) that had three (count ’em) different types of vegetable in it. Three! I felt like a proper adult as well! Also, with my fitness now completely gone, I get to stage some kind of Rocky style comeback. I won’t be punching anyone, but I will faced with some kind of training regime, which I actually like. If I can just get over my fear of going running again… Having time off work has also enabled me to sample retirement. And it’s fantastic, if you take away the pain, anxiety, nausea, confusion and exhaustion! But, I’m hoping that actual retirement won’t feature any of this! So now, I have an age in my head that I’d like to semi-retire by and for the first time in many years I’ve done some research into my pension. I love my job, but it clearly hasn’t helped my health, so there has to be some kind of plan, however tentative. It’s no good vowing to change and then doing all of the same things all over again, however much you loved them.

So there we have it. Apologies for ending such a silly, lighthearted piece with such a serious few sentences, but it’s all true. And even the serious stuff has come about because of my pacemaker, so it had to be mentioned as a benefit, however unfunny it was!

I hope you enjoyed reading.

Fighting fit; an occasional diary.

Last time I wrote one of these diary entry style posts I was getting fitter and stronger as I was able to get out walking every day. Not far, but enough to keep myself ticking over and gaining in fitness. I’d also grown a beard, simply because my circumstances meant that I couldn’t shave and finally, I was having trouble sleeping. So, in short, I was writing a diary entry about how mind-numbingly boring life was in recovering from an operation!

Well, I’m not sure it’s got anymore exciting.

A couple of weeks ago I had a little bit of a set back, albeit in terms of the rough plan I had in my head. With only a week to go of my sick note from work I rang them and tentatively agreed that I’d be back teaching at the start of January. It was more my call than theirs, to be fair. Sadly though, only a few days later, having spoken to my doctor, I was forced to call them back and let them know that I’d had to arrange another month long sick note. I had a really rough weekend, feeling tired all of the time, sick and still in quite a bit of pain from my scarring. It simply dawned on me that I was rushing things far too much. I spoke to some friends, family and people who’d had similar procedures and they reminded me of just how much I’d been through and that it wasn’t just a case of getting fit enough to go out for a walk that would get me back to normal life. My doctor agreed and was more than happy to renew my sick note and so, I bowed to the greater knowledge before me and made probably the best decision I’d made in years. I’m not very good at just resting, but I’ve realised that I need to stop rushing things too. I’m discovering that patience is key in this recovery business!

Since then, there’s been a real disruption to my safe little routine by way of Christmas and all that comes with preparing for big day. I’ve not been able to do a great deal in terms of decorating the house or going out on shopping trips to get what Santa’s elves can’t make, but I’ve been able to join in with some of the wrapping, despite my very limited wrapping skills. Truth is, I wrap presents like a moody child in a hurry to do anything but wrap presents, but needs must I suppose.

I also managed to fit in two hospital visits, both of which threw my routine out , but more of that later.

All of this has meant that my daily walks have stopped. In fact, before today, my last walk was on 15th December, meaning that some of the fitness that I’d built up has probably been lost.

However, before that I’d been managing to get out for a walk every day and for the last week of doing so we’d had some lovely weather too. For a couple of those days I ventured up to one of our local parks simply because it would mean walking a little bit further than I’d been managing and also as I knew it would look lovely in the sun, as you can see below. Being in the park felt lovely though; a great deal better than just sticking to the streets close to where I live. So, even though I was really tired out just getting there, it was well worth it…even if when I walked there for the second day in succession my legs felt like jelly and I had to have a sit down on a park bench for a short while just to make sure that I’d get home in one piece!

The plan now that Christmas is out of the way though, is to start getting back out there and making the most of the fresh air. I found some new sculptures of animals (pictured below) on one of my park visits and am assured that there are more, so I’m definitely going to head up and explore again, all in the name of fitness!

The final major thing that’s happened over the last few weeks is the hospital visits. My first was a pacemaker clinic just over a week before Christmas. It only took around 30 minutes, but in that time the specialist was able to let me know that there had been no drama since I’d left hospital. She adjusted my pacemaker a little bit in order to help with my breathlessness and told me a little bit about its battery life and function and I left feeling pretty good about it all. It’s fascinating stuff when you see that they just drape a wand-like piece of machinery over your shoulder which then reads the data off your pacemaker. The kind of technology that makes me feel even older!

Then, almost a week later and a few days before Christmas, I went in for an appointment with a cardiologist. It turned out that this was actually to do with a previous problem, but when he saw my notes and learned of my procedure, he was able to talk me through quite a bit about what was going on, which was great.

It was quite the good news day. Firstly, he told me that there was no damage to my heart. Apparently my problem is merely ‘electrical’ in that my pacemaker cells haven’t been controlling the rhythm of my heart very well at all. Hence, the need for my pacemaker. Although I’d been told this in hospital it was still comforting to know as I’d had some of the symptoms of a heart attack on more than one occasion leading up to my time in hospital. But, it seems I’m made of stronger stuff than I’d thought!

The other bit of good news was that I was told to work my way off my beta blockers, which have been fairly responsible for me feeling so rough and tired all of the time. So for now, I have a half a tablet per day, but soon I’ll leave them behind altogether. In turn, this means that I’ll be able to go out running fairly soon, although I’m happy to force myself to wait until I feel as right as possible until I actually do it. If I’ve learnt one thing in all of this it’s that I need to start listening to my body more and to stop being so eager to be on the move all of the time. That said though, I cannot wait to get out and run again. My last run was on October 14th. After that, everything started to go downhill and within a month I was in hospital.

It’s been 50 days since I was admitted to hospital. I went in thinking I’d be back to full fitness within a few days, only to be brought crashing down to Earth by the news of a pacemaker. Fingers crossed that I’m closing in on getting back to normal.